Autism spectrum disorder Mental and Behavioural Disorders
Conditions
Interventions
This study will test the feasibility of tailoring healthcare to support access for older autistic people. As each participant’s situation will be unique (i.e. each person’s needs, healthcare status, a
for instance, assisting with organising travel to, and from, appointments. Once the initial assessment is complete, the participant and research clinician will identify which adjustments will be best
Sponsors
Northumberland Tyne and Wear NHS Foundation Trust
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Adults who are aged 50 or older with a diagnosis of ASD 2. Maybe male, female, or other gender 3. Live in the North East of England 4. Currently have at least two long-term physical health condition for which they may, or may not, be accessing health services
Exclusion criteria
Exclusion criteria: 1. An age of less than 50 2. Living outside the specified geographic area 3. Non-English speakers (this is because the researchers do not have the funding, nor the capacity, to accommodate participants who do not speak English)
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| No primary outcome, as this is a feasibility study. We will measure outcomes through a composite score based on two of the study measures: The World Health Organisation Quality of Life Questionnaire (Brief; WHOQoL-BREF) and the Physical Health Indicators in Autism/Learning Disabilities (POMONA). Data will be collected at baseline (when the participant has given consent) and 1 month after the end of the intervention (follow-up). Feasibility, acceptability, recruitment and retention through the trial: 1. Recruitment rate recorded as the number of eligible participants who consent to participate in the study by 9 months 2. Attrition rate recorded as the number of participants who consent to participate that remain in the study until the end of follow up at 6 weeks post intervention 3. Acceptability of trial procedures and treatment received measured using a bespoke semi-structured interview administered post-intervention | — |
Secondary
| Measure | Time frame |
|---|---|
| A number of outcome measures related to expected outcomes of the intervention will be tested for feasibility: 1. Adaptive functioning measured by the Waisman Activities of Daily Living Scale – Adaptive (W-ADL) at baseline 2. Quality of life measured by the World Health Organisation Qualify of Life – BREF (WHOQOL-BREF) scale plus the disabilities module and ASD addendum at baseline 3. Physical health measured using the Physical Health Indicators in Autism/Learning Disabilities (POMONA) Each measure will be administered at baseline, within one week from the end of the intervention, and at follow-up (6 weeks after the end of the intervention) | — |
Countries
United Kingdom
Outcome results
None listed