People living with HIV and treated for anal cancer Other
Conditions
Interventions
Observational study
This study uses a co-production methodology in which a person-centred intervention will be developed by researchers alongside stakeholders to align research and service development
Sponsors
Royal Marsden NHS Foundation Trust
Eligibility
Sex/Gender
All
Age
18 Years to 90 Years
Inclusion criteria
Inclusion criteria: Lived Experience participants: 1. HIV positive 2. Anal cancer diagnosis within the last 5 years 3. 18 years and upwards 4. Has received pelvic chemoradiotherapy for anal cancer Stakeholder participants 1. Healthcare professionals of all disciplines involved in the care and support of people living with HIV who are being treated for anal cancer 2. Members of charitable organisations and advocacy groups with relevant knowledge
Exclusion criteria
Exclusion criteria: Lived experience participants: 1. Has received surgery alone or laser ablation for early-stage anal cancer/anal intraepithelial neoplasia
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The development of a pilot person-centred intervention, associated resources and guidance on delivery methods using interviews and focus group discussions with patients and stakeholders, guided by a co-production approach | — |
Secondary
| Measure | Time frame |
|---|---|
| A rich and detailed description of the experiences of people living with HIV and undergoing treatment for anal cancer drawn from patient and stakeholder interviews | — |
Countries
England, United Kingdom
Contacts
Public ContactEmma Hainsworth
Outcome results
None listed