Motor neurone disease Nervous System Diseases
Conditions
Interventions
We will conduct a mixed-methods study to test the MND Alert toolkit in up to 30 GP practices. The aim is to see if this automated alert system can help identify potential cases of MND in patient recor
however, the identifiable data will only be used within the GP practices for verification. After this verification, GP practices will share only the pseudonymised data with the central research team t
Sponsors
University of Sheffield
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Stage 1: MND Alert implementation GP practices: 1. Located in South Yorkshire 2. Willing to integrate the MND Alert toolkit into their electronic health records 3. Using either the SystmOne or EMIS Web clinical information systems 4. Consenting to share pseudo-anonymised patient data generated through the implementation of the MND Alert toolkit 5. Willing to provide researchers access to complete patient records for conducting case note reviews of patients who triggered an alert 6. Willing and able to regularly provide feedback and share monthly pseudo-anonymised data generated through the MND Alert toolkit with the central research team Stage 2: MND Alert evaluation 1. English-speaking individuals who can provide informed consent 2. GPs from participating practices 3. GPs willing to participate in semi-structured interviews to share their experiences with the MND Alert toolkit 4. Individuals with access to a telephone or video-calling service (if semi-structured interviews are conducted remotely)
Exclusion criteria
Exclusion criteria: Stage 1: MND Alert implementation GP practices: 1. Located outside of the NHS South Yorkshire ICB region 2. Unwilling or unable to integrate the MND Alert toolkit into their electronic health records 3. Not using either the SystmOne or EMIS Web clinical information systems 4. Not consenting to share pseudo-anonymised patient data generated through the implementation of the MND Alert toolkit 5. Unwilling or unable to provide researchers access to complete patient records for conducting case note reviews of patients who triggered an alert 6. Unwilling or unable to regularly provide feedback and share monthly data generated through the MND Alert toolkit with the central research team Stage 2: MND Alert evaluation 1. GPs unwilling to participate in semi-structured interviews to share their experiences with the MND Alert toolkit
Design outcomes
Secondary
| Measure | Time frame |
|---|---|
| There are no secondary outcome measures | — |
Countries
England, United Kingdom
Contacts
Public ContactCara Gates
Outcome results
None listed