Brain tumor, leukemia Cancer
Conditions
Interventions
In the first phase of the project, pediatric cancer survivors and caregivers will be interviewed about their experience of functioning and quality of life. Also, a consecutive cohort of pediatric canc
Sponsors
Skåne University Hospital
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Aged 5-17 years 2. Diagnosed with brain tumor or leukemia before the age of 13 years 3. Treated at the Children’s Hospital, Skåne University Hospital 4. Followed 5-10 years after diagnosis at Children's Hospital, Skåne University Hospital 5. Caregiver
Exclusion criteria
Exclusion criteria: 1. Participants unable to walk independently with/without walker 2. Participants who have had a relapse of their cancer 3. Participants who are having an ongoing medical cancer treatment
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Levels of physical activity objectively measured using an accelerometer (a wearable device). The amount of minutes registered over a consecutive week in the intensity moderate to vigorous physical activity per day will be analyzed. 2. Self-assessment of the level of physical activity, sedentary behaviour and estimation of the intensity of various physical activities in the last 7 days using the International Physical Activity Questionnaire in a structured interview Assessments will be performed with both measures for all participants in the screening in the first phase of the project. For participants included in the PAP intervention the assessment will be repeated directly after the 12 weeks of intervention and at the 12 months follow-up in the second phase of the project. | — |
Secondary
| Measure | Time frame |
|---|---|
| In the first phase of the project, secondary outcome measures 1-6 will be used to assess functioning and health-related quality of life (HRQoL). In phase two of the project outcome measures 1-8 will be used to assess functioning and HRQoL. 1. The overall gross and fine motor function will be assessed for all participants by the short form of the standardized norm-referenced Bruiniks Oseretsky test (BOT-2- SF). Scores will be derived from the total score and results of the test will be presented with standard scores and percentiles. For participants included in the PAP intervention the assessement will be repeated directly after the 12 weeks of intervention and at the 12-month follow-up. 2. Aerobic capacity and endurance will be assessed by the 6 -minute walk test. The participant will be asked to walk during six consecutive minutes in a self-selected speed, the distance (m) walked during the 6 minutes will be measured. The test will be performed for all participants and for those included in the PAP intervention, the assessment will be repeated directly after the 12 weeks of intervention and at the 12-month follow-up. 3. The maximal grip strength of both hands will be measured by the Grippit measure for all participants. Participants will be asked to press a handle that measures the grip force (N) using a standardised routine. Results will be compared to results from a normal sample. For participants included in the PAP- intervention the assessment will be repeated directly after the 12 weeks of intervention and at the 12-month follow-up. 4. Health-related quality of life will be assessed using the questionnaire PedsQL in all participants and caregivers. PedsQL consists of 23 items categorised into four sub-scales; physical functioning, emotional functioning, social functioning and school functioning. A total score is determined by adding up all answered items and dividing the sum by the number of items answered. Higher scores demonstrate greater HRQoL.For partici | — |
Countries
Sweden
Contacts
Public ContactJohanna Willcox
Outcome results
None listed