Family history of a genetic condition Not Applicable
Conditions
Interventions
Randomised GP practices to receive genetics education and patients referred with trial GP practices to receive a genetics clinic appointment in primary or secondary care
Sponsors
Southampton University Hospitals Trust and University of Southampton (UK)
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: All patients referred to the Wessex Clinical Genetics Service (WCGS) registered with a trial GP practice. All patients of all ages. If a child is referred one parent/guardian will complete the questionnaire, both sexes, all ethic groups.
Exclusion criteria
Exclusion criteria: 1. Any patient who has previously been seen by the WCGS 2. Non GP referrals will be excluded from the education comparison 3. Urgent and ward referrals will be excluded from the location comparison 4. Patients receiving a home visit as a pre-clinic contact will be excluded from the location comparison
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Education: GP referral rate to clinical genetics Location: clinic attendance rate | — |
Secondary
| Measure | Time frame |
|---|---|
| Education: referral type, referral practice and attitudes to clinical genetics Location: Patient satisfaction, patient clinic travel costs, NHS clinic costs, clinic waiting times, patients remaining in primary care | — |
Countries
United Kingdom
Outcome results
None listed