Participatory learning and action groups for disability Other
Conditions
Interventions
The trial will evaluate a community-based four-phase Participatory Learning and Action for Disability (PLA-D) cycle intervention, locally known as “Tusobola” or “We Can”, the intervention is focused o
Sponsors
London School of Hygiene & Tropical Medicine
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Reside in a cluster village 2. Have a disability 3. Provide consent (themselves or via their caregiver/head of household) for involvement in the trial
Exclusion criteria
Exclusion criteria: Living outside the cluster village
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Current primary outcome(s) as of 07/05/2026: Mortality or unplanned hospitalisation among people among people with disabilities in the study clusters measured using reports from household members (mortality) or participants (hospitalisation) and verified through two sources (e.g., family and neighbour/death certificate (mortality)/ participant's hospital book (hospitalisation) during 24 months of follow-up _____ Previous primary outcome(s): Mortality and unplanned hospitalization among people with disabilities in the study clusters measured using reports from household members (mortality) or participants (hospitalisation) and verified through two sources (e.g., family and neighbour/death certificate (mortality)/ participant's hospital book (hospitalisation) during 24 months of follow-up | — |
Secondary
| Measure | Time frame |
|---|---|
| Current key secondary outcome(s) as of 07/05/2026: The following secondary outcome measures will be assessed at baseline and endline (24 months post-baseline): 1. Quality of life measured using WHO-QOL BREF for adults 18+ years and PedsQL Parent Report for children 2-18 years 2. Health expenditure measured through participant self-report of healthcare costs. Total outpatient costs in Ugandan shillings (UGS) will be reported for individuals who had an outpatient visit to a health facility in the last 3 months. Total inpatient costs will be reported for individuals who had a visit that included an overnight stay in the last 3 months. Transport costs will be reported for outpatient and inpatient visits. 3. Morbidity measured using a questionnaire adapted from the WHO Model Disability Survey, which assesses the presence and severity of 23 health conditions. We will analyse the presence/absence of each condition as well as the total number of conditions. 4. Attitudes measured using the Model disability survey question set for adults 18+ years on attitudes towards disability, which assesses both personal and perceived societal attitudes. 5. Participation measured using SINTEF participation questionnaire for adults 18+ years and CASP question set for children 5-18 years. 6. Health access measured using the following variables related to access to health care which will be analysed separately : 1) In the last 3 months did you need health care? 2) Where did you go most often when you felt sick or needed to consult someone about your health? 3) What was the main reason you needed care, even if you did not get care? 4) Which reason(s) best explains why you did not get health care? 7. Health care quality/satisfaction: This outcome will be assessed at baseline and endline using four questions capturing different aspects of quality with each item scored on a 5-point scale and an overall quality score will be calculated. Intervention implementation costs are measured using im | — |
Countries
Uganda
Contacts
Public ContactSarah Marks
Outcome results
None listed