A feasibility study of an online support programme to help South Asian people newly diagnosed with rheumatoid arthritis manage their condition

Improving patient education for people of South Asian origin living with rheumatoid arthritis in England

Status

Recruiting

Phases

Unknown

Study type

Interventional

Source

ISRCTN

Registry ID

ISRCTN65320670

Enrollment

Registered

2026-06-18

Start date

2026-01-30

Completion date

Unknown

Last updated

2026-06-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Rheumatoid arthritis (RA) Musculoskeletal Diseases

Interventions

Standard care (both study arms): All participants will receive standard NHS rheumatology care, including routine early inflammatory arthritis clinic appointments, pharmacological management in accorda

Eligibility

Sex/Gender

All

Age

18 Years to 100 Years

Inclusion criteria

Inclusion criteria: 1. People diagnosed with RA within a year, using the American College of Rheumatology/European League Against Rheumatism 2010 (ACR/EULAR 2010) criteria 2. Adults >=18 years old 3. Ability to communicate in Hindi, Punjabi, or Urdu 4. For usual care: people who have not previously received the Apni Jung programme 5. For usual care plus Apni Jung: access to the internet/phone/YouTube

Exclusion criteria

Exclusion criteria: 1. People from non-South Asian backgrounds 2. Members of the PPI team in this study

Design outcomes

Primary

Measure	Time frame
1. Patient enablement measured using the Patient Enablement Instrument (PEI) at baseline and at 3 months 2. Feasibility outcomes: recruitment rate (proportion of target number recruited at 3 months), retention rate (proportion of recruited participants with 3-month follow-up data), contamination rate (proportion of control participants who accessed Apni Jung), and questionnaire completion rates	—

Secondary

Measure	Time frame
1. Quality of life measured using the EuroQol EQ-5D-5L at baseline and 3 months 2. Health education impact measured using the Health Education Impact Questionnaire (HeiQ) at baseline and 3 months 3. Health literacy measured using the Health Literacy Questionnaire (HLQ) at baseline only 4. Illness perceptions measured using the Short Brief Illness Perception Questionnaire (Brief-IPQ) at baseline and 3 months 5. Healthcare resource utilisation measured using weekly participant diaries throughout the 3-month follow-up period, capturing primary care visits, hospital visits, inpatient stays, investigations, medications, and non-NHS expenditure	—

Measure

Time frame

1. Quality of life measured using the EuroQol EQ-5D-5L at baseline and 3 months 2. Health education impact measured using the Health Education Impact Questionnaire (HeiQ) at baseline and 3 months 3. Health literacy measured using the Health Literacy Questionnaire (HLQ) at baseline only 4. Illness perceptions measured using the Short Brief Illness Perception Questionnaire (Brief-IPQ) at baseline and 3 months 5. Healthcare resource utilisation measured using weekly participant diaries throughout the 3-month follow-up period, capturing primary care visits, hospital visits, inpatient stays, investigations, medications, and non-NHS expenditure

—

Countries

England, United Kingdom

Contacts

Public ContactLorraine;Kanta Jacques;Kumar

;

lorraine.jacques@nhs.net;k.kumar@bham.ac.uk+44 (0)1902 695065;+44 (0)121 414 3344

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Jul 3, 2026