Care of people at the end of their lives in the rural and coastal communities of the South West Peninsula of England

Care of people at the end of their lives in the rural and coastal communities of the South West Peninsula of England: A participatory realist evaluation

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

ISRCTN

Registry ID

ISRCTN64949421

Enrollment

320

Registered

2026-04-22

Start date

2026-02-20

Completion date

Unknown

Last updated

2026-05-19

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

People at the end of life, family members and professionals Other

Interventions

The study will use a participatory realist approach with four work packages (WP) which will run concurrently across 28 months. WP1. 12 Case studies across the 6 geographical networks for EoL care and

focused ethnographies

and focus groups. WP 2. Survey with EoL leads across the UK, and 30 – 35 interviews with local and national stakeholders, EoL care policy analysis, systematic review of global innovations to address c

Eligibility

Sex/Gender

All

Age

18 Years to 105 Years

Inclusion criteria

Inclusion criteria: 1. Male or female. Aged 18 years or over 2. Patients and family members must live in a rural or coastal location within the SW Peninsula (Devon, Cornwall, Somerset). 3. Able and willing to provide informed consent 4. Able to communicate in English (or with support if translation is needed) 5. Patients must be towards the end of life (within the last 12 months) (Harding and Higginson 2010) 6. Family members must be bereaved or currently caring for someone approaching the end of life (and six weeks since bereavement) 7. Professionals must be working within primary, community, acute, social care or voluntary sector services supporting people at the end of life 8. Professionals must be based within one of the identified geographical or population case study areas

Exclusion criteria

Exclusion criteria: 1. Aged under 18 years 2. Not living or working in a rural or coastal location within the SW Peninsula (Devon, Cornwall, Somerset) 3. Unable and unwilling to provide informed consent 4. Unable to communicate in English (or with support if translation is needed) 5. Patients not towards the end of life 6. Professionals based outside the identified geographical or population case study areas

Countries

England, Northern Ireland, Scotland, United Kingdom, Wales

Contacts

Public ContactGina Kallis

gina.kallis@plymouth.ac.uk+44 7731664168

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: May 22, 2026