Neonatal care Neonatal Diseases
Conditions
Interventions
Through qualitative work with parents of babies previously needing UK neonatal care, the researchers identified the type of infant information parents find important in neonatal care. They matched thi
Sponsors
Imperial College London
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Parents (male or female) of babies who are currently inpatients on the neonatal unit 2. The parental age lower limit will be 16 years 3. The researchers will start recruiting parents with babies in the lower intensity part of the unit (SCBU- Special Care Baby Unit) who are medically stable and not acutely unwell, in order to minimise the risk of causing anxiety to parents 4. They will recruit parents in SCBU only for 4 weeks, include High Dependency Unit parents in recruitment for 2 weeks and include Intensive Care Unit parents in the final 2 weeks
Exclusion criteria
Exclusion criteria: 1. Parents who cannot speak and/or read English will be excluded as the study’s information documents and communication tool are in English 2. Parents younger than 16 years of age
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Parent satisfaction with communication of clinical information and involvement in care, assessed using validated self-administered parent questionnaire, the Parents' Experiences of Communication in Neonatal Care (PEC) questionnaire at baseline, twice weekly and at the end of piloting phase. | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Parent interactions with staff, assessed with PEC questionnaire at baseline, twice weekly and at the end of piloting phase 2. Neonatal staff workload, assessed with self-administered staff questionnaire at baseline, twice weekly and at the end of piloting phase 3. Data completeness, assessed using historical completeness data from the National Neonatal Research Database and current completeness data from the live neonatal EPR at baseline, every day and at the end of piloting phase 4. Parent/staff interaction and parental views on information communication assessed with one-on-one interviews with parents and staff at baseline and at end of piloting phase | — |
Countries
England, United Kingdom
Contacts
Public ContactSusanna Sakonidou
Outcome results
None listed