Family carers for people with dementia Nervous System Diseases
Conditions
Interventions
Four co-design workshops including family carers for people with dementia and healthcare professionals will be conducted and user-testing of the final prototype platform. Workshops will include one in
Sponsors
King's College London
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Family carers for people with dementia eligibility: 1. Adults over the age of 18 years old 2. Must be a current or bereaved carer (family or close friend) for a person with dementia Healthcare professionals’ eligibility: 1. Experience working with family carers for people with dementia 2. Registered healthcare qualification, e.g., adult nursing, mental health nursing, medical doctor (geriatrician, Old Age Psychiatrist)
Exclusion criteria
Exclusion criteria: Participants will be not eligible for this study if they are under the age of 18 and a family carer for any other condition that is not dementia or a professional carer. Healthcare professionals will not be eligible if they have no experience working with family carers for people with dementia and do not have a fully registered healthcare qualification.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The following variables will be assessed through the development of this platform using co-design workshops with family carers and healthcare professionals from 3 months onwards of the project: 1. Supporting the needs and priorities of family carers 2. Perceived sense of community and social inclusion 3. Gaps in knowledge and information during healthcare appointments 4. Accuracy, accessibility, and enabling nature of information shared 5. User satisfaction and acceptability of the platform | — |
Secondary
| Measure | Time frame |
|---|---|
| There are no secondary outcome measures | — |
Countries
England, United Kingdom
Contacts
Public ContactAnnabel Farnood
Outcome results
None listed