Palliative and end of life care Other
Conditions
Interventions
A multi-perspective mixed-methods study will be conducted with patients, caregivers, and health professionals, focusing on socioeconomic deprivation. This study will be structured into four work packa
Sponsors
University of Leeds
Eligibility
Sex/Gender
All
Age
18 Years to 110 Years
Inclusion criteria
Inclusion criteria: 1. Patients in receipt of palliative care and their carers 2. Health professionals working with patients in receipt of palliative care 3. Commissioners and palliative care leads
Exclusion criteria
Exclusion criteria: Patients and Carers: 1. Adults with advanced serious illness who are unable to participate in a conversational interview for any reason related to their condition 2. Adults with advanced serious illness who are unable to provide informed consent for any reason related to their condition (for example, becoming too unwell or approaching the end of life) 3. Children and young people aged < 18 years 4. Carers and/or family members who have not been invited to take part by the patient participant Health professionals: This is a community-based study, so it excludes participants who work exclusively in hospital trusts
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| To improve access to and experience of palliative care for patients living in areas of socioeconomic deprivation, the following data will be measured using realist methods: 1. The experiences of people (patients with palliative care needs, carers, health professionals) of access to palliative care in the community in the North and North East of England will be captured through conversational interviews 2. Patient and carer priorities for future care via case note reviews detailing patients’ service use (e.g., types and frequency of services accessed, health professionals consulted) will be assessed through a national cross-sectional Discrete Choice Experiment (DCE) survey | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Resource use and cost data will be measured using dynamic simulation modelling developed based on current provision of palliative care in the community (e.g. service use). 2. A second model will be developed that predicts resource use and cost of a proposed integrated approach of the provision of palliative and end-of-life care in the community. | — |
Countries
England, United Kingdom
Contacts
Public ContactJacqueline Birtwistle
Outcome results
None listed