Explanation of diagnoses via a patient portal Not Applicable
Conditions
Interventions
We have developed a method to generalize diagnoses to more general concepts that do have patient-friendly terms and definitions in the SNOMED CT Netherlands Patient-Friendly Extension (PFE), by employ
Sponsors
Amsterdam University Medical Centers
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Any patient portal user. Patient portal users can be the patients themselves or others that are authorized to use the portal to access the patient’s EHR functionality through the portal. They can be authorized by the patient themselves or be the parents of a child that is a patient at the hospital for instance. The target number of participants concerns the expected number of users that will visit the patient portal's problem list during the study period.
Exclusion criteria
Exclusion criteria: Any user that uses the portal for testing purposes with a test account, e.g. an application manager.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. The coverage of the clarifications, measured as the median percentage of diagnoses with a clarification that was displayed per patient (number of diagnoses with a clarification divided by the number of diagnoses), measured during the 9-week study period 2. The use of the clarification functionality, measured as the median percentage of unique info-buttons clicked compared to the total number of info-buttons per patient (number of diagnoses with clarifications) displayed on the diagnosis list, as measured during the 9-week study period | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. User characteristics of users for each step: unique user logins, users that view their diagnosis list, users that clicked on any info button, user ratings, from the number of logins, views, clicks and ratings per user. User characteristics are user type (authorized or patient user), age group and gender, as measured during the 9-week study period 2. Diagnosis clarification level: for each diagnosis the number of times users log in for a patient with that diagnosis, number of times the diagnoses were viewed, the info button was clicked, and the feedback received. Users can rate the quality of the clarifications on a seven-point scale from very bad to very good and optionally describe in a free-text input field why they provided that rating. Measurements are about the 9-week study period | — |
Countries
Netherlands
Contacts
Public ContactHugo J.T.;Hugo J.T. van Mens;van Mens
;
Outcome results
None listed