Participants requiring referral to specialty care (neurology, ophthalmology, oncology) Not Applicable
Conditions
Interventions
Participants who self-identify as American Indian or Alaska Native with any indication requiring referral to a specialist (neurologist, ophthalmologist, and oncologist) after a PCP standard of care vi
Sponsors
Genentech, Inc.
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Aged 18 years or more 2. Ability to read English at 8th grade proficiency or have a household member willing to assist in translation to complete patient surveys 3. Self-identification as American Indian or Alaska Native 4. Referred to an oncologist, neurologist, or ophthalmologist for the first time 5. Personal landline or cell phone and/or access to internet 6. Willingness to complete all surveys in the study and participate for 12 months
Exclusion criteria
Exclusion criteria: 1. Currently under the care of a specialist (>3 months) to whom they are being referred to by the PCP (i.e., to be eligible, the specialty care physician should be new to the participant) 2. Currently or planned to receive care that requires in participant visits for the indication requiring referral from the PCP (e.g., radiotherapy, chemotherapy for cancer diagnosis) within 3 months of consent date
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Percentage of AI/AN participants seen by a specialist for advanced care after PCP referral to a specialist assessed using data collected in electronic case report forms (eCRF) at Months 6 and 12 | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Percentage of participants seen by a specialist and treated for their disease assessed using data collected in eCRF at Months 6 and 12 2. Participant reported barriers to specialty referral completion assessed using data collected from surveys at Months 6 and 12 | — |
Countries
United States of America
Contacts
Public ContactClinical Trials
Outcome results
None listed