Carers of people with dementia Mental and Behavioural Disorders Unspecified dementia
Conditions
Interventions
Half of the cohort will receive the DECIDE decision aid we have created, the other half will receive 'treatment as usual'. In this instance that will be telling carers that if they want any further in
Sponsors
University College London (UK)
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Current, unpaid, main informal carer (e.g. a family member or friend in regular contact who is either next of kin or a ‘key decision maker’) 2. English language skills sufficient to participate in interviews. Whilst it is acknowledged that that the ideal would be to use the first language of all potential participants unfortunately there were not funds to provide interpreters
Exclusion criteria
Exclusion criteria: 1. Carers under the age of 18 years 2. Carers where there are clinical concerns that may preclude them from being approached such as severe physical or mental illness or lack of capacity to give informed consent
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The proportion of family carers who receive the DECIDE manual who report finding it relevant (defined a priori as a score of 4 or 5 on a 5 point Likert scale) and the proportion of family carers who receive the DECIDE manual who report finding it useful (defined a priori as a score of 8, 9 or 10 on a 10 point Likert scale). | — |
Secondary
| Measure | Time frame |
|---|---|
| To test the secondary hypothesis that family carers who receive the DECIDE manual intervention will report lower scores on the total Decisional Conflict Scale score and Informed sub-scale score, when compared to family carers in the treatment as usual group 10 weeks post baseline. | — |
Countries
England, United Kingdom
Contacts
Public ContactKathryn Lord
Outcome results
None listed