The Forget Me Not Approach: Improving the communication of a dementia diagnosis.

The 'Forget Me Not' approach: Co-producing accessible guidance videos for communicating and receiving a dementia diagnosis.

Status

Active, not recruiting

Phases

Unknown

Study type

Interventional

Source

ISRCTN

Registry ID

ISRCTN58124004

Enrollment

120

Registered

2023-08-09

Start date

2023-08-14

Completion date

Unknown

Last updated

2024-11-04

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Dementias and Neurodegeneration Nervous System Diseases

Interventions

This proposal has been designed by co-applicants Roy James, Sandie Read and Harry Davis, a group of researchers living with dementia who call themselves the Forget Me Nots (FMNs). The FMNs have been w

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: People attending (or who have attended) memory clinics: 1. Received a diagnosis in the last 2 years 2. OR be about to attend a memory clinic for a diagnostic appointment Companions of those attending (or who have attended) memory clinics: 1. Have accompanied someone to a memory clinic to receive a diagnosis of dementia 2. OR be about to accompany someone to a memory clinic diagnostic appointment Clinicians: Regularly deliver diagnoses of dementia

Exclusion criteria

Exclusion criteria: People with dementia who received a diagnosis of dementia over 2 years ago

Design outcomes

Primary

Measure	Time frame
Improving the experience of receiving and delivering a dementia diagnosis as follows: 1. Identify what aspects of a consultation in a memory assessment clinic work best in communicating a dementia diagnosis. Measured using feedback from viewing pre-recorded videos of dementia diagnosis in data workshops with the study team and wider data workshops with people who have received a dementia diagnosis in the past two years, companions of people who have received a diagnosis in the past two years, and in a separate workshop with clinicians who deliver dementia diagnoses in Work Package 1 2. Can co-produced communication training videos have a positive impact on the delivery or receipt of a dementia diagnosis? Measured through interviews with people in the process of a memory assessment and their companions, and separate interviews with clinicians who deliver dementia diagnoses in Work Package 2	—

Measure

Time frame

Improving the experience of receiving and delivering a dementia diagnosis as follows: 1. Identify what aspects of a consultation in a memory assessment clinic work best in communicating a dementia diagnosis. Measured using feedback from viewing pre-recorded videos of dementia diagnosis in data workshops with the study team and wider data workshops with people who have received a dementia diagnosis in the past two years, companions of people who have received a diagnosis in the past two years, and in a separate workshop with clinicians who deliver dementia diagnoses in Work Package 1 2. Can co-produced communication training videos have a positive impact on the delivery or receipt of a dementia diagnosis? Measured through interviews with people in the process of a memory assessment and their companions, and separate interviews with clinicians who deliver dementia diagnoses in Work Package 2

—

Secondary

Measure	Time frame
Identify positive aspects of the communication of a dementia diagnosis as follows: 1. Identify what aspects of a consultation in a memory assessment clinic work best in communicating a dementia diagnosis. Measured using feedback from viewing pre-recorded videos of dementia diagnosis in data workshops with the study team and wider data workshops with people who have received a dementia diagnosis in the past two years, companions of people who have received a diagnosis in the past two years, and in a separate workshop with clinicians who deliver dementia diagnoses in Work Package 1 2. Can co-produced communication training videos have a positive impact on the delivery or receipt of a dementia diagnosis? Measured through interviews with people in the process of a memory assessment and their companions, and separate interviews with clinicians who deliver dementia diagnoses in Work Package 2	—

Measure

Time frame

Identify positive aspects of the communication of a dementia diagnosis as follows: 1. Identify what aspects of a consultation in a memory assessment clinic work best in communicating a dementia diagnosis. Measured using feedback from viewing pre-recorded videos of dementia diagnosis in data workshops with the study team and wider data workshops with people who have received a dementia diagnosis in the past two years, companions of people who have received a diagnosis in the past two years, and in a separate workshop with clinicians who deliver dementia diagnoses in Work Package 1 2. Can co-produced communication training videos have a positive impact on the delivery or receipt of a dementia diagnosis? Measured through interviews with people in the process of a memory assessment and their companions, and separate interviews with clinicians who deliver dementia diagnoses in Work Package 2

—

Countries

England, United Kingdom

Contacts

Public ContactJillian Powell

Jill.Powell@bristol.ac.ukNone provided

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Feb 4, 2026