Advanced cancer Cancer
Conditions
Interventions
Two separate groups will be recruited for the FGIs:
1. Ten brain tumour patients and ten relatives together with one representative from a brain tumour patient organisation
Sponsors
Rigshospitalet, University of Copenhagen UCSF 9701
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Two separate groups will be recruited for the FGIs: 1. Ten brain tumour patients and ten relatives (not dyads) together with one representative from a brain tumour patient organisation 2. Ten patients with acute leukaemia, ten relatives one representative from the patient support organisation for lymphoma and leukemia (LyLe). Participants must be a minimum of 18 years of age, have a Karnofsky Performance Status (KPS) of = 60 and speak and understand Danish. Patients must have undergone at least two rounds of chemotherapy having experiences as a patient undergoing oncological treatment.
Exclusion criteria
Exclusion criteria: 1. Karnofsky Performance Status (KPS) of < 60 2. Under 18 years of age
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. To establish meaningful cooperation between patients, relatives, specialists and researchers to identify, discuss and prioritise future research fields with a view to strengthening supportive care, palliative care and HRQOL including symptom management during and after the course of the disease and treatment 2. To examine existing literature on the identified fields to determine research relevance | — |
Secondary
| Measure | Time frame |
|---|---|
| To disseminate the findings and methods in a Danish context | — |
Countries
Denmark
Outcome results
None listed