Support for family caregivers of people with cognitive impairment in primary care. Not Applicable
Conditions
Interventions
Family caregivers are coached initially on a 2-weekly basis, later on a 6-weekly basis - in four visits (= outreach) and two telephone calls. In the initial visit, practice assistants (German: "Medizi
MPFPs) systematically explore the family caregivers' current problems and stresses as well as their priority needs and objectives. On that basis, recommendations are developed and regional care servic
Sponsors
University and University Hospital of Zurich
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Age =18 years 2. Family caregiver of individuals with cognitive functional impairment ("Alzheimer's Disease", "Dementia" or "Development of a cognitive disorder") 3. Person who: 1) is perceived by the study physician/MPFP to be the key informal family caregiver of the index patient or, 2) is identified by the index patient as a key informal family caregiver or, 3) is identified by others (professional caregivers, legal representatives, family members) as the key informal family caregiver.
Exclusion criteria
Exclusion criteria: 1. Presence of cognitive impairment 2. Insufficient language ability in German 3. Moribund case of the family caregiver or the index patient with a remaining life expectancy of <3 months
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The burden of care, assessed using the ZBI (Zarit Burden Inventory) at the first home visit at T0 (baseline) and the last home visit at T5 (6 months after T0). | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Change in the ZBI score of family caregivers between T0 and T6 (9 months after T0). 2. Change in quality of life, assessed using the EQ-5D-5L instrument, of family caregivers between T0 and T5. 3. Changes in quality of life of family caregivers between T0 and T6 (follow-up). 4. Health care utilization by dementia patients under care: Institutionalization, hospitalizations, medical consultations, emergency medical consultations, emergency department visits. | — |
Countries
Switzerland
Outcome results
None listed