Topic: Dementias and Neurodegenerative Diseases Research Network
Conditions
Interventions
Multidisciplinary team intervention:
Multidisciplinary rehabilitation will be provided over six weeks. Initial assessment by specialist multidisciplinary team of Parkinson?s nurse specialist (coordin
agreed care plan tailored to individual needs.
Care assistant support:
Half of the participants receiving multidisciplinary rehabilitation will additionally receive ongoing support from a care assis
Sponsors
University of Surrey (UK)
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Person with Parkinson's: To be included in the study, the person with Parkinson's must: 1. Be 18 years and over, either sex 2. Have a clinical diagnosis of Parkinson's made by a specialist 3. Live in the community with his/her own living area (own home or minimally sheltered accommodation) 4. Live inside the catchment area of NHS Surrey 5. Be able to read and write English in order to complete the validated self-report questionnaires 6. Provide written consent 7. Have adequate cognitive function to engage with rehabilitation 8. Have some limitation on any of the outcome measures Live-in carer: To be included in the study, the carer must: 1. Live-in with the person with Parkinson's enrolled in the study 2. Be 18 years and over, either sex 3. Be able to read and write English in order to complete the validated self-report questionnaires 4. Provide written consent 5. Have some limitation on any of the carer outcome measures
Exclusion criteria
Exclusion criteria: 1. People with Parkinson's having (or have had in the past six months) a multidisciplinary rehabilitation package of care 2. People with Parkinson's taking part (or have had in the past six months took part) in a rehabilitation based research study for Parkinson's
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Self Assessment Parkinson's Disease Disability Scale - Person with Parkinson's, measured at baseline, 6, 24 and 36 weeks | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Abridged Emerson and Enderby Screening Assessment Rating Scale - Person with Parkinson?s, measured at baseline, 6, 24 and 36 weeks 2. Acceptability of intervention: semi-structured interviews - Person with Parkinson's and Live-in carer, measured at 24 weeks 3. Barthel ADL index - Person with Parkinson's and Live-in carer, measured at baseline, 6, 24 and 36 weeks 4. EuroQol 5D with utility index - Person with Parkinson's and Live-in carer, measured at baseline, 6, 24 and 36 weeks 5. Falls self-report - Person with Parkinson?s, measured at baseline, 6, 24 and 36 weeks 6. Frenchay Activities Index - Person with Parkinson's and Live-in carer, measured at baseline, 6, 24 and 36 weeks 7. Frenchay Summary - Person with Parkinson?s, measured at baseline, 6, 24 and 36 weeks 8. General Health Questionnaire-12 - Live-in carer, measured at baseline, 6, 24 and 36 weeks 9. Health and social care utilisation: customised proforma - Person with Parkinson?s, measured at baseline, 24 and 36 weeks 10. Hospital Anxiety and Depression Scale - Person with Parkinson's and Live-in carer, measured at baseline, 6, 24 and 36 weeks 11. Modified Caregiver Strain Index - Live-in carer, measured at baseline, 6, 24 and 36 weeks 12. Non Motor Symptoms Questionnaire - Person with Parkinson?s, measured at baseline, 6, 24 and 36 weeks 13. Pain Visual analogue scale - Person with Parkinson?s, measured at baseline, 6, 24 and 36 weeks 14. Parkinson's Disease Questionnaire-8 - Person with Parkinson?s, measured at baseline, 6, 24 and 36 weeks 15. Posture and gait items from Unified Parkinson's Disease Rating Scale - Person with Parkinson?s, measured at baseline, 6, 24 and 36 weeks 16. Self efficacy scale - Person with Parkinson?s, measured at baseline, 6, 24 and 36 weeks 17. Short Form-36 Health Survey - Person with Parkinson's and Live-in carer, measured at baseline, 6, 24 and 36 weeks 18. Single speech item from Unified Parkinson's Disease Rating Scale - Person with Parkinson?s, measur | — |
Countries
United Kingdom
Outcome results
None listed