Voices of children and young people with cerebral palsy about participation in recreational activities

Beyond Physiotherapy: Voices of children and young people with cerebral palsy and their carers about ‘Participation’ in recreational activities

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

ISRCTN

Registry ID

ISRCTN42717948

Enrollment

Registered

2018-05-02

Start date

2017-04-01

Completion date

Unknown

Last updated

2024-07-08

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Cerebral Palsy Nervous System Diseases

Interventions

A multiple case study design is being used. Each case study comprises 2 interviews, a diary and observations at their usual recreational activity over 12 weeks. This includes some visual data. The aim

Eligibility

Sex/Gender

All

Inclusion criteria

Inclusion criteria: 1.Parent or carer of child with cerebral palsy 2.Cerebral palsy levels III, IV and V as specified by Gross motor function classification system

Exclusion criteria

Exclusion criteria: 1.Cerebral palsy level I and II as specified by Gross motor function classification system

Design outcomes

Primary

Measure	Time frame
1.How children and young people with cerebral palsy and their parents view, experience and choose their level of participation in recreational activities. This is assessed for the duration of the 12 weeks at varying times and frequencies using qualitative approaches. Surfing, Brownies. Spradley’s (2016) checklist of observations was adapted to observe emotional wellbeing (Spradley, J. P. 2016. Participant observation. Waveland Press). Field notes and photographs were taken to provide context at these observations. Behaviours such as smiling, refusal, biting or hair pulling were recorded.	—

Measure

Time frame

1.How children and young people with cerebral palsy and their parents view, experience and choose their level of participation in recreational activities. This is assessed for the duration of the 12 weeks at varying times and frequencies using qualitative approaches. Surfing, Brownies. Spradley’s (2016) checklist of observations was adapted to observe emotional wellbeing (Spradley, J. P. 2016. Participant observation. Waveland Press). Field notes and photographs were taken to provide context at these observations. Behaviours such as smiling, refusal, biting or hair pulling were recorded.

—

Secondary

Measure	Time frame
1.How participants perceive participation in recreational activities affects their emotional well being. This is assessed by interviews conducted at week 1 and week 12, observations and assessing diary entries.	—

Countries

United Kingdom, Wales

Contacts

Public ContactDawn Pickering

pickeringdm@cf.ac.uk+442920687741

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Feb 4, 2026