Stroke rehabilitation Nervous System Diseases Stroke, not specified as haemorrhage or infarction
Conditions
Interventions
Self management programme - workbook helping with collborative goal setting
Sponsors
St George's University of London (UK)
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Team: Community stroke teams are eligible to take part if they: 1. Receive a regular number of stroke referrals (equivalent to number of referrals in previous pilot work) and contain team members with recognised stroke expertise 2. Where possible have not taken part in any previous training in self management e.g. Bridges/Gaining confidence after stroe Patient: Patients will be eligible to take part if they have a confirmed diagnosis of stroke, can follow a two stage commandcan read simple text and/or have a carer or supported to assist The patient held stroke workbook is used as an adjunct to the SMP. Previous research has reported the workbook is problematic if a participant is unable to read or follow a twostage command, particularly if there is supporter.
Exclusion criteria
Exclusion criteria: Decisions to exclude participants will be made with the cluster guardian in consultataion with a speech and language therapist or psychologist of participating teams.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Stroke and Aphasia Quality of life (SAQOL) scale | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Nottingham Extended Activities of Daily Living Scale (NEADL) 2. The Stroke Self-Efficacy Questionnaire (SSEQ) 3. The Hospital Anxiety and Depression Scale (HAD) 4. The Short form 12 (SF12) 5. Qualitative Evaluation: There will be an embedded process evaluation to assess fidelity, quality and feasibility of implementation of the SMP, clarify causal mechanisms, and identify contextual factors associated with variation in outcomes to include: 5.1. Patients in intervention clusters will be interviewed to explore their perceptions and experiences of using the SMP 5.2. Patients in control sites will be interviewed at the same time point to explore their experiences of rehabilitation and how they have been supported to self-manage 5.3. Carers or supporters of stroke participants in both intervention and control clusters will be interviewed to explore perceptions of how their partner/friend has been assisted to self-manage either through using the SMP (intervention site) or through usual rehabilitation 5.4. Clinicians in intervention clusters will be interviewed in focus groups at the end of the trial to explore; key components barriers and enablers to using the SMP as part of current rehabilitation 5.5. Clinicians at control sites will be interviewed in focus groups to explore attitudes and beliefs about current practice and how they support self-management. 6. Economic evaluation: This will focus primarily on resource implications of the integrated SMP, calculating: 6.1. The cost of integrating SMP 6.2. The impact of SMP on service utilisation in the 3 months rehabilitation period post stroke | — |
Countries
United Kingdom
Outcome results
None listed