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Perceptions/experiences of end of life care for those living with/supporting those living with respiratory disease

Family, patient and staff perceptions and experiences of end of life care for those living with a non-malignant progressive respiratory condition

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
ISRCTN
Registry ID
ISRCTN42163968
Enrollment
20
Registered
2022-06-14
Start date
2014-02-01
Completion date
Unknown
Last updated
2026-03-02

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Non-malignant progressive respiratory disease Respiratory

Interventions

Individual semi-structured interviews are carried out to discuss the participants' experiences of the management of long term, progressive, non-malignant respiratory disease.

Sponsors

University of Hertfordshire
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: 1. Individuals living with a non-malignant progressive respiratory condition 2. Individuals supporting/supported someone living with/lived with a non-malignant progressive respiratory condition 3. Nurses working in primary care (practice) with patients with a non-malignant progressive respiratory condition

Exclusion criteria

Exclusion criteria: Those unable to give understand the study and provide informed consent due to issues with capacity

Design outcomes

Primary

MeasureTime frame
The participants' experiences of the management of long term, progressive, non-malignant respiratory disease, measured using a qualitative interview with each participant at least 5 years post the commencement of their involvement with this condition. The data from these interviews are analysed using thematic analysis including interrogation of the data, coding and development of themes

Secondary

MeasureTime frame
There are no secondary outcome measures

Countries

England, United Kingdom

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Mar 14, 2026