Engaging young service users with neurodevelopmental conditions in shaping their daily living support – a preliminary evaluation of a new tool

Feasibility and acceptability of a tool for engaging young service users with neurodevelopmental conditions in designing their daily living support: a non-randomised mixed methods study

Status

Active, not recruiting

Phases

Unknown

Study type

Interventional

Source

ISRCTN

Registry ID

ISRCTN40551389

Enrollment

Registered

2023-10-25

Start date

2023-11-01

Completion date

Unknown

Last updated

2026-06-08

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Service user engagement among young adults with autism spectrum condition or attention deficit hyperactivity disorder. Mental and Behavioural Disorders

Interventions

This feasibility study will employ a single-arm design, where all participating service users will be offered the tool for increased service user engagement in conjunction with their support as usual.

Eligibility

Sex/Gender

All

Age

18 Years to 29 Years

Inclusion criteria

Inclusion criteria: 1. Aged 18 to 29 years old 2. Autism spectrum condition or attention deficit hyperactivity disorder 3. Currently accessing housing support 4. Sufficient proficiency in Swedish

Exclusion criteria

Exclusion criteria: Not meeting the participant inclusion criteria

Design outcomes

Primary

Measure	Time frame
Feasibility/acceptability: 1. Recruitment rate, uptake, and retention will be measured using information collected continuously over the course of the study 2. Characteristics of the included and retained samples (e.g., diagnoses, age, gender, housing/residence) and current needs, and preferences related to daily living support will be measured using information collected at pre-intervention 3. Usefulness and relevance of the tool will be measured using an evaluation form post-intervention 4. Participation/involvement will be measured using the Patient Participation and Rehabilitation Questionnaire pre-and post-intervention 5. Overall feasibility/acceptability will be measured using in-depth interviews with participating service users and their support workers post-intervention	—

Measure

Time frame

Feasibility/acceptability: 1. Recruitment rate, uptake, and retention will be measured using information collected continuously over the course of the study 2. Characteristics of the included and retained samples (e.g., diagnoses, age, gender, housing/residence) and current needs, and preferences related to daily living support will be measured using information collected at pre-intervention 3. Usefulness and relevance of the tool will be measured using an evaluation form post-intervention 4. Participation/involvement will be measured using the Patient Participation and Rehabilitation Questionnaire pre-and post-intervention 5. Overall feasibility/acceptability will be measured using in-depth interviews with participating service users and their support workers post-intervention

—

Secondary

Measure	Time frame
Preliminary effects: 1. Quality of life measured using the Assessment of Quality of Life (AQoL-8D) tool pre- and post-intervention 2. Self-efficacy measured using the Generalized Self-Efficacy Scale (GSE) pre- and post-intervention	—

Countries

Sweden

Contacts

Public ContactUlf Jonsson

ulf.jonsson@ki.se+46 (0)73 806 43 37

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Jun 11, 2026