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SHIELD Carer Supporter Programme for family carers of people with dementia

SHIELD Carer Supporter Programme: a peer support intervention for newer family carers of people with dementia

Status
Active, not recruiting
Phases
Unknown
Study type
Interventional
Source
ISRCTN
Registry ID
ISRCTN37956201
Enrollment
300
Registered
2009-08-27
Start date
2009-07-01
Completion date
Unknown
Last updated
2016-10-17

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Dementia Mental and Behavioural Disorders Unspecified dementia

Interventions

Three intervention conditions and one control condition are evaluated. These are: 1. SHIELD Carer Supporter Programme (CSP) 2. Remembering Yesterday, Caring Today (RYCT) group reminiscence work 3. Com

Sponsors

North East London NHS Foundation Trust (UK)
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: 1. English-speaking family caregivers aged 18 years or over, either sex 2. Identified by themselves as a carer for person with a primary progressive cognitive impairment/dementia as defined by Diagnostic and Statistical Manual of Mental Disorders, 4th Edition (DSM-IV) criteria for dementia including Alzheimer's, vascular dementia, dementia of Lewy Body type, and mixed dementias 3. Both the family carers and the person with dementia live within the areas covered by the research

Exclusion criteria

Exclusion criteria: 1. Carers of people who are living in Residential, Nursing or long-stay hospital accommodation on a permanent basis 2. Carers of people with: congenital cognitive impairments (e.g. Down's syndrome); acquired non-progressive brain injury; cognitive impairments in the context of longstanding psychiatric illness e.g. schizophrenia 3. 'Carers' with significant congenital or acquired cognitive impairment, or where cognitive deficits are suspected in the carer 4. Family members with whom the suspected diagnosis of dementia has not been disclosed/discussed 5. Seriously ill carers, e.g. those receiving hospice or hospital treatment for terminal illness 6. Carers unable to take part in an intervention of 10 months duration 7. Carer unwilling for their person they care for to be approached 8. Non-family, paid carers 9. Either party already taking part in a psychosocial research study

Design outcomes

Primary

MeasureTime frame
1. Quality of life 2. Self-efficacy Measured at baseline pre-randomisation, then at 2 follow ups: + 5 months from randomisation and +12 months randomisation.

Secondary

MeasureTime frame
1. Relationship quality 2. Anxiety and depression 3. Social Support 4. Hospitalisation/institutionalisation Measured at baseline pre-randomisation, then at 2 follow ups: + 5 months from randomisation and +12 months randomisation.

Countries

United Kingdom

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Mar 1, 2026