Dementia Mental and Behavioural Disorders Unspecified dementia
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: 1. English-speaking family caregivers aged 18 years or over, either sex 2. Identified by themselves as a carer for person with a primary progressive cognitive impairment/dementia as defined by Diagnostic and Statistical Manual of Mental Disorders, 4th Edition (DSM-IV) criteria for dementia including Alzheimer's, vascular dementia, dementia of Lewy Body type, and mixed dementias 3. Both the family carers and the person with dementia live within the areas covered by the research
Exclusion criteria
Exclusion criteria: 1. Carers of people who are living in Residential, Nursing or long-stay hospital accommodation on a permanent basis 2. Carers of people with: congenital cognitive impairments (e.g. Down's syndrome); acquired non-progressive brain injury; cognitive impairments in the context of longstanding psychiatric illness e.g. schizophrenia 3. 'Carers' with significant congenital or acquired cognitive impairment, or where cognitive deficits are suspected in the carer 4. Family members with whom the suspected diagnosis of dementia has not been disclosed/discussed 5. Seriously ill carers, e.g. those receiving hospice or hospital treatment for terminal illness 6. Carers unable to take part in an intervention of 10 months duration 7. Carer unwilling for their person they care for to be approached 8. Non-family, paid carers 9. Either party already taking part in a psychosocial research study
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Quality of life 2. Self-efficacy Measured at baseline pre-randomisation, then at 2 follow ups: + 5 months from randomisation and +12 months randomisation. | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Relationship quality 2. Anxiety and depression 3. Social Support 4. Hospitalisation/institutionalisation Measured at baseline pre-randomisation, then at 2 follow ups: + 5 months from randomisation and +12 months randomisation. | — |
Countries
United Kingdom