Adolescents and young adults diagnosed with selected cancers (lymphoma, testicular cancer, ovarian cancer, breast cancer, cervix cancer and CNS tumors). Cancer
Conditions
Interventions
Individuals will be identified through national cancer registers, approached by postal mail one year post-diagnosis and asked to complete standardized questionnaires. Those rating high levels of ferti
Sponsors
Karolinska Institutet
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Diagnosed with lymphoma, testicular cancer, ovarian cancer, breast cancer, cervix cancer and tumors of the central nervous system 2. Twelve months post-diagnosis 3. Aged 15 to 39 at diagnosis 4. Rating fertility-related distress or sexual dysfunction
Exclusion criteria
Exclusion criteria: Patients who do not understand and speak the Swedish language
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Fertility-related distress, measured with the Reproduction Concerns After Cancer (RCAC) scale 2. Sexual function, measured with the PROMIS Sexual Function and Satisfaction Measures (global satisfaction with sex life, interest in sexual activity, lubrication, vaginal discomfort, erectile function, orgasm) and selected items developed for use among cancer populations The effect of the intervention will be evaluted 12 weeks (T2) and 24 weeks (T3) after randomization (short-term evaluation), and 3 years (T4) and 5 years (T5) after diagnosis (long-term evaluation). | — |
Secondary
| Measure | Time frame |
|---|---|
| Health-related quality of life, assessed with the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire (EORTC QLQ-C30) 12 weeks (T2) and 24 weeks (T3) after randomization (short-term evaluation), and 3 years (T4) and 5 Years (T5) after diagnosis (long-term evaluation). | — |
Countries
Sweden
Contacts
Public ContactLena;Claudia Wettergren;Lampic
;
Outcome results
None listed