Post-traumatic stress disorder in adults with intellectual disabilities Mental and Behavioural Disorders Post-traumatic stress disorder in adults with intellectual disabilities
Conditions
Interventions
Intervention:
Patients will be treated using an adapted PES+EMDR protocol based on a combination of adult, child and attachment-focused EMDR. The PES phase of the protocol (Phase 1) comprises ten week
and/or trauma-focused or non-trauma-focussed (such as anger/stress management) psychological interventions.
Participants in the TAU arm of the trial will not be offered trauma-focussed therapy but cou
Sponsors
Birmingham Community Healthcare NHS Foundation Trust
Eligibility
Sex/Gender
All
Age
18 Years to 65 Years
Inclusion criteria
Inclusion criteria: Patients with intellectual disabilities (PwID) 1. Aged > = 18 to = 18 and over 2. A family member or carer of a person with ID who has consented to participate in the trial 3. Able to communicate in English and to provide informed consent to study participation Added 14/11/2025: 4. Able to attend clinic visits (or remote sessions if offered) or be present when a researcher performs the assessment visit
Exclusion criteria
Exclusion criteria: 1. Assessed by the clinical team as at high risk and/or requiring urgent treatment 2. Currently in therapy and unwilling to intermit 3. Previously completed a course of EMDR 4. Psychosis not well controlled by medication 5. Change of psychotropic medication or dosage within the last month 6. Unable to complete the assessments. 7. Any medical condition or treatment which, in the opinion of investigators, could affect the safety of the participant’s participation or outcomes of the study.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Score at the 8 month (post-treatment) follow up assessment using the Impact of Events Scale-revised for people with intellectual disabiltiies (IES-ID). | — |
Secondary
| Measure | Time frame |
|---|---|
| Current secondary outcome measures as of 14/11/2025: 1. PTSD symptoms measured using the Impact of Events Scale – Intellectual Disabilities (IES-ID) at 4 months and 14 months 2. PTSD symptoms measured using Lancaster & Northgate Trauma Scales (LANTS) at 4 months, 8 months and 14 months 3. Depression symptoms measured using the Glasgow Depression Scale (GDS) at 4 months, 8 months and 14 months 4. Anxiety symptoms measured using the Glasgow Anxiety Scale (GAS) at 4 months, 8 months and 14 months 5. Mental health measured using Clinical Outcomes in Routine Evaluation – Learning Disability (CORE-LD) at 4 months, 8 months and 14 months 6. Mental health measured using the Moss Psychiatric Assessment Schedules (MPAS-ID) at 4 months, 8 months and 14 months 7. Quality of life measured using the Short Form Health Survey - 12 (SF-12) at 4 months, 8 months and 14 months 8. Quality of life measured using the Personal Wellbeing Index (PWI) at 4 months, 8 months and 14 months 9. Challenging behaviour measured using the Aberrant Behavior Checklist (ABC) at 4 months, 8 months and 14 months 10. Carer burden measured using the Warwick-Edinburgh Mental Well-being Scale (WEMWBS) at 4 months, 8 months and 14 months 11. Economic impact measured using the Client Service Receipt Inventory - Intellectual Disabilities (CSRI-ID) at 4 months, 8 months and 14 months Previous secondary outcome measures: 1. PTSD symptoms measured using the Impact of Events Scale – Intellectual Disabilities (IES-ID) at 4 months and 14 months 2. PTSD symptoms measured using Lancaster & Northgate Trauma Scales (LANTS) at 4 months, 8 months and 14 months 3. Depression symptoms measured using the Glasgow Depression Scale (GDS) at 4 months, 8 months and 14 months 4. Anxiety symptoms measured using the Glasgow Anxiety Scale (GAS) at 4 months, 8 months and 14 months 5. Mental health measured using Clinical Outcomes in Routine Evaluation – Learning Disability (CORE-LD) at 4 months, 8 months and 14 months 6. Mental health | — |
Countries
England, United Kingdom
Outcome results
None listed