Patients at risk of, or who have accessed urgent and emergency care services for, complications of cancer and its treatment (and their informal caregivers). Cancer
Conditions
Interventions
Participants will be recruited to one of two study components: a prospective component or a retrospective component. In the prospective component, participants will be asked to use a semi-structured d
Sponsors
University of Southampton
Eligibility
Sex/Gender
All
Age
18 Years to 100 Years
Inclusion criteria
Inclusion criteria: Patient participant inclusion criteria: both study components 1. Age =18 years 2. Confirmed diagnosis of cancer (including cancer of unknown primary). Patient participant inclusion criteria: prospective component only People receiving (or due to start) non-surgical cancer treatment, or people with an ongoing complication of cancer or its treatment requiring self-management Patient participant inclusion criteria: retrospective component only Have accessed an urgent or emergency care service in the past 2 weeks for a suspected complication of cancer or its treatment Informal caregiver inclusion criteria: both study components 1. Is a relative or friend of a patient meeting the patient participant inclusion criteria above 2. Meets the United Kingdom Department of Health and Social Care’s definition of an informal caregiver
Exclusion criteria
Exclusion criteria: Patient participant exclusion criteria: both study components 1. Age <18 years 2. No confirmed cancer diagnosis (including malignancy of unknown origin) 3. People receiving surgery as cancer treatment only 4. People resident at a nursing or care home, hospice or other institutional care setting 5. Prisoners or people supervised by representatives of His Majesty’s Prison Service Patient participant exclusion criteria: prospective component 1. People discharged from the care of an oncologist or haematologist 2. People in the last hours or days of life
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The considerations, preferences and experiences that influence patients' and informal caregivers' decisions about appraising symptoms and accessing urgent and emergency care services for complications of cancer and its treatment measured using a semi-structured interview at one timepoint | — |
Secondary
| Measure | Time frame |
|---|---|
| There are no secondary outcome measures | — |
Countries
England, United Kingdom
Contacts
Public ContactJohn Defty
Outcome results
None listed