Overcoming barriers to research in patients with kidney disease

Understanding and overcoming barriers to research involvement of patients with kidney disease from underserved communities

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

ISRCTN

Registry ID

ISRCTN25504528

Enrollment

Registered

2024-08-22

Start date

2024-08-31

Completion date

Unknown

Last updated

2026-04-14

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Kidney disease Urological and Genital Diseases

Interventions

The research participants will be identified by the direct care team who look after them. They will represent the different ethnic communities, all age groups and modalities of kidney treatment. The

whether barriers to research participation exist and ways to overcome them

how they might be supported and encouraged to participate in future research. The responses to the participant will be recorded, with their permission. This will be the only encounter that the partic

obstacles that they think prevent greater engagement and what would provide them with more confidence to approach patients from diverse ethnic community backgrounds to increase research engagement.

Eligibility

Sex/Gender

All

Age

18 Years to 120 Years

Inclusion criteria

Inclusion criteria: 1. 18 years of age or more 2. Patients with kidney disease under the care of the NCA kidney centre 3. Selected from one of the six main ethnic communities served by the NCA kidney centre

Exclusion criteria

Exclusion criteria: 1. <18 years of age 2. Lacking the cognitive capacity to consent to participate in the research

Design outcomes

Primary

Measure	Time frame
Stage 1. Research staff’s view on approaching patients from diverse backgrounds measured using a questionnaire at a single timepoint for each participant Stage 2. A nuanced understanding of the lived experiences of people from diverse ethnic communities relating to living with kidney disease, accessing healthcare, and participating in research measured using biographical interviews at a single timepoint for each participant Stage 3. Development of the toolkit for approach for research engagement and a targeted information campaign measured using data collected throughout the study	—

Measure

Time frame

Stage 1. Research staff’s view on approaching patients from diverse backgrounds measured using a questionnaire at a single timepoint for each participant Stage 2. A nuanced understanding of the lived experiences of people from diverse ethnic communities relating to living with kidney disease, accessing healthcare, and participating in research measured using biographical interviews at a single timepoint for each participant Stage 3. Development of the toolkit for approach for research engagement and a targeted information campaign measured using data collected throughout the study

—

Secondary

Measure	Time frame
There are no secondary outcome measures	—

Countries

England, United Kingdom

Contacts

Public ContactHannah Howlett

hannah.howlett@nca.nhs.uk-

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Apr 17, 2026