Specialty: Dementias and neurodegeneration, Primary sub-specialty: Dementia
Conditions
Interventions
Participants receive five home visits at three month intervals over 12 month periods. This involves being asked a series of questionnaires relating to outcomes for people living with dementia (the sta
Sponsors
Ixico PLC
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Cognitively Impaired Participants: 1. Aged 18 years or older 2. Referred to a Memory Assessment Service with suspected Dementia by GP 3. Able to understand written and spoken English with the assistance of a carer/ study partner 4. Have capacity to consent Study Partners: 1. Aged 18 years or older 2. Partner, Family Member or Close Friend is a participant in CYGNUS in the cognitively impaired participant group 3. English speaking/able to understand study documents
Exclusion criteria
Exclusion criteria: Cognitively Impaired Participants: 1. Aged younger than 18 years 2. Currently resident in a care or nursing home 3. Do not have capacity to consent Study Partners: 1. Aged younger than 18 years 2. Do not have capacity to consent 3. Previously referred to memory assessment service themselves
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Information about Memory Assessment Services are measured using patient and carer reported outcomes (PRO) (Quality of Life, Activates of Daily Living, etc) at baseline, three, six, nine and twelve months. | — |
Secondary
| Measure | Time frame |
|---|---|
| Feasibility to collect quality and actionable patient and carer reported outcomes is measured using web-based and mobile technologies continuously or at weekly increments. | — |
Countries
United Kingdom
Contacts
Public ContactFrancine Jury
Outcome results
None listed