Chronic heart failure and chronic obstructive pulmonary disease Circulatory System
Conditions
Interventions
This is a before-after intervention study consisting of 3 sequential phases: baseline phase, training phase and intervention phase. During the baseline phase the control group will receive standard ca
Sponsors
UZ Leuven/KU Leuven
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Patients: Adult patients that have been re-admitted at least once within a year with a New York Heart Association classification (NYHA) classification of III/IV for CHF (table 1) and with Global Initiative for Chronic Obstructive Lung Disease (GOLD) stages C/D for COPD. These patients should have an assessed life expectancy of at least 6 months. Informal caregivers: Informal caregiver is defined as that proxy person who takes care and supports the patient for most of the time. This caregiver may not necessarily be a family member. They should be aged 18 or above, should be able to communicate in Dutch and should be cognitively able to complete questionnaires.
Exclusion criteria
Exclusion criteria: 1. Under the age of 18 2. Unable to communicate in Dutch 3. People who lack mental capacity to complete questionnaires, 4. If the Surprise question “Would you be surprised if the patient died within 1 year?” is answered “Yes”
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Measured at baseline and 3 months follow-up: 1. Quality of life and the level of symptom control measured using the Palliative Outcome Scale questionnaire 2. Quality of care measured using the Canhelp Lite questionnaire | — |
Secondary
| Measure | Time frame |
|---|---|
| Different elements of advance care planning and overall quality of care measured using a self-developed ad-hoc questionnaire at baseline and 3 months follow-up | — |
Countries
Belgium
Outcome results
None listed