Adolescents with Moyamoya disease Circulatory System
Conditions
Interventions
The study involves a cross-sectional survey of Korean adolescents with Moyamoya disease. The study will examine a hypothetical model by integrating the concepts of a structural health-related quality-
Sponsors
Yonsei University
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Moyamoya disease for >1 month 2. No other diseases 3. Able to respond to a questionnaire. 4. Able to confirm their understanding of the purpose of the study and agree to participate voluntarily providing online written consent 5. Aged between 13 and 18 years
Exclusion criteria
Exclusion criteria: 1. History of mental illness 2. Difficulty in participating (e.g. hearing and visual impairment)
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Subjective health status measured using a 5-point simple-question Likert scale, ranging from 1 point (very bad) to 5 points (very good) at a single timepoint 2. Quality of life measured using a quality of life scale (Varni et al., 1998) at a single timepoint | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Social support measured using a social support scale (Malecki et al., 2000) at a single timepoint. Higher scores indicate more social support in each area. 2. Sense of coherence measured using a sense of coherence scale (Antonovsky, 1987) at a single timepoint 3. Health behavior measured using the moyamoya health behavior scale (Oh et al., 2021) at a single timepoint. Higher scores indicate better health behaviors related to moyamoya disease. 4. Stress measured using the stress scale for adolescents (Kim and Bae, 2014) at a single timepoint | — |
Countries
Korea, South
Contacts
Public ContactInsun Yeom
Outcome results
None listed