Severe dementia Mental and Behavioural Disorders Dementia
Conditions
Interventions
Participants will be followed for a year during their stay at a closed-environment dementia care ward. They were not assigned a kind of ward by the researchers. At three points during the study (the b
Sponsors
University of Tilburg (Netherlands) - Department Tranzo
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Care centres were selected based on the kind of wards existing contacts and willingness to participate. Traditional and Small-scale closed-environment wards were selected with a policy indicating that a patient can stay there till the end of their life. From those care centres participants were selected who were patients suffering from dementia, over the age of 70, of either sex. Also, information from family and direct care-givers of the participants were included in the study. For every participant a compliance form was filled out and returned by the family to the researchers
Exclusion criteria
Exclusion criteria: 1. Patients did not fit the inclusion criteria 2. Patients did not finish the study. This could happen for example by a death or by moving to another institution.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Quality of life, assessed by Quality of Life in Dementia (QUALIDEM) 2. Activities of daily living (ADL), assessed by Barthel Index 3. Depression, assessed by Cornell Scale for Depression in Dementia (CSDD) 4. Neuropsychiatric symptoms, assessed by Neuropsychiatric Inventory, Nursing Home Version (NPI-NH) 5. Social engagement, assessed by Revised Index of Social Engagement (RISE) taken from the Resident Assessment Instrument (RAI 2.0) All outcomes were measured at baseline (i.e. start of study), 6 months and one year. All questionnaires used were in the Dutch language. | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Control measures: 1.1. Severity of dementia, assessed by Standardized Mini Mental State Examination (S-MMSE) 1.2. Medications falling in the category antipsychotics, antidepressants and sedatives were 1.3. Restriction measures, kind of measure and number of measures were noted 1.4. Visitors, a single question was answered how many times a month the patient gets a visit from family or friends 1.5. Weight, registered fully clothed and with shoes on 2. Family: 2.1. Quality of care 2.2. Interactive activities with their loved one The questionnaire they received was designed by the researchers themselves. A copy can be requested through the contact details below. 3. Staff: 3.1. Work load and work experience The questionnaire they received was designed by the researchers themselves. A copy can be requested through the contact details below. Additionally, staff filled out the Utrecht Burnout Scale (Utrechtse Burnout Schaal) (UBOS-C), a questionnaire for professions in which physical contact is present All patient and family outcomes will be measured at baseline (i.e. start of study), 6 months and one year. Staff outcomes will be measured at the beginning and end of the study. All questionnaires used were in the Dutch language. | — |
Countries
Belgium, Netherlands
Outcome results
None listed