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Living with post COVID-19 symptoms: A survey of people's experiences

Understanding the experiences of living with Long Covid – the “Living with post COVID-19 symptoms” survey

Status
Recruiting
Phases
Unknown
Study type
Observational
Source
ISRCTN
Registry ID
ISRCTN21581826
Enrollment
300
Registered
2024-10-23
Start date
2024-10-25
Completion date
Unknown
Last updated
2025-03-10

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Persons living with post COVID-19 symptoms Other

Interventions

People with protracted symptoms potentially related to PCC and people who have been diagnosed by a healthcare professional with PCC are invited to tell their story about living with persistent symptom

Sponsors

University of Zurich, Epidemiology, Biostatistics and Prevention Institute
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: 1. People with symptoms related to PCC or diagnoses with PCC. 2. Adults aged 18 years or older. 3. Good knowledge of German (reading, speaking, and writing). 4. Ability to follow the study procedure. 5. Provided informed consent.

Exclusion criteria

Exclusion criteria: There are no exclusion criteria.

Design outcomes

Primary

MeasureTime frame
Categories of key events (e.g., an event marking a loss of one's usual ability to perform, relationship problems resulting from change in health) that participants have experienced and their emotional valence measured using a one-time electronic semi-structured survey

Secondary

MeasureTime frame
Measured using a one-time electronic semi-structured survey: 1. Factors (e.g., age, gender, PCC severity or symptom clusters) associated with experiencing key life event categories 2. Mental wellbeing and depressive symptoms associated with the different life events categories 3. Frequency of high-impact life event types (e.g., personal life, work-related etc.) 4. Coping strategies and experienced support

Countries

Switzerland

Contacts

Public ContactTala Ballouz
tala.ballouz@uzh.ch+41 44 63 43548

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Feb 4, 2026