Well-being in parents of children/adults with intellectual disabilities Not Applicable Well-being in parents of children/adults with intellectual disabilities
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: Current inclusion criteria as of 23/10/2018: Parents of children or adults of any age with intellectual disabilities who are living with their parent(s) for the majority of time (intellectual disabilities will be defined administratively, by parents reporting that the child or adult has received a diagnosis and/or is in receipt of UK learning disability services). Previous inclusion criteria: Parents of children or adults of any age with intellectual disabilities who are living with their parent(s) (intellectual disabilities will be defined administratively, by parents reporting that the child or adult has received a diagnosis and/or is in receipt of UK learning disability services)
Exclusion criteria
Exclusion criteria: Parents concurrently receiving an individual or group therapy for stress, well-being, or mental health problems (including other mindfulness-based interventions). We will gather information on parents’ previous use of any mindfulness-based interventions, but this will not be an exclusion criterion.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Parent psychological well-being, assessed using the Warwick-Edinburgh Mental Well-Being Scale at the baseline, after 12 weeks and after 6 months. | — |
Secondary
| Measure | Time frame |
|---|---|
| The following will be assessed at the baseline, after 12 weeks and after 6 months: 1. Parental anxiety and depression, assessed using the Hospital Anxiety and Depression Scale (HADS) 2. Parental health-related quality of life, assessed using the EQ-5D-5L 3. Parent relationship with partner, assessed using: 3.1. Happiness of Relationship Scale 3.2. Disagreement over issues related to parenting/care of the child (from the Millennium Cohort Study Wave 2, 2003-2005) 4. Perception of family functioning/quality of life, assessed using the Family APGAR Scale 5. Parenting efficacy, assessed using 7 items from the Parenting Sense of Competence Scale (PSOC) 6. Parental perceptions of the positive impact of their child, assessed using the Positive Gain Scale 7. Parenting relationship, assessed using the Child-Parent Relationship Scale (CPRS) | — |
Countries
United Kingdom