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Discharge from palliative care study

Improving patients’, carers’ and primary care healthcare professionals’ experiences of discharge communication from specialist palliative care to community settings: a qualitative interview study

Status
Active, not recruiting
Phases
Unknown
Study type
Observational
Source
ISRCTN
Registry ID
ISRCTN18098027
Enrollment
45
Registered
2023-12-29
Start date
2024-02-01
Completion date
Unknown
Last updated
2025-09-29

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Palliative care Other

Interventions

This is a 15-month observational study, (multi-centre) involving qualitative semi-structured interviews. This is a single interview study only with no intervention or follow-up. This is a qualitative

Sponsors

University of Birmingham
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: Inclusion criteria for patients and carers: 1. Adult (18+ years old) patients or carers for patients discharged to primary care from a participating specialist palliative care facility at a hospital or hospice following an episode of care 2. Discharge event no longer than two weeks ago at the time of participant screening and selection for the study Inclusion criteria for primary care healthcare professional interviews: Working in a participating General Practice team (including associated community nursing) and receiving and/or acting upon discharge communications. This may include, but not be limited to, General Practitioners, Nurse Practitioners, and District Nurses.

Exclusion criteria

Exclusion criteria: Exclusion criteria (all): 1. Children (those aged <18 years old) 2. Patients who are deemed by their care team or treating clinician as lacking the capacity to provide informed consent to participate in the study (e.g. Alzheimer’s) or are otherwise deemed unsuitable for study participation 3. Patients discharged to providers or units other than primary care (e.g. discharge to secondary care) 4. Persons who have expressed a prior wish not to participate in research 5. Bereaved carers (<6 months ago) 6. Healthcare professional who has worked for less than one month in Primary Care

Design outcomes

Primary

MeasureTime frame
Patient, carer, and healthcare professional experiences are measured using qualitative semi-structured interviews conducted over the duration of approximately 1 hour

Secondary

MeasureTime frame
There are no secondary outcome measures

Countries

England, United Kingdom

Contacts

Public ContactKatharine;John Weetman;MacArtney

;

k.e.weetman@bham.ac.uk;John.Macartney@warwick.ac.uk+44 (0)121 414 3344;+44 (0)2476 150619

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Feb 7, 2026