Recognition of burdensome symptoms and needs in people with dementia Mental and Behavioural Disorders
Conditions
Interventions
The nature of the intervention is the nurse’s or relative’s estimation and documentation of possible symptoms, which affect the PwD. The IPOS-Dem (instrument to be validated) is guiding the nurses’ an
Sponsors
Zurich University of Applied Sciences
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: PwD (patients at home and/or on the acute geriatric ward): 1. PwD with a diagnosis of vascular dementia or Alzheimer disease, which is documented in the patient notes, or 2. PwD with dementia-like symptoms (cognitive impairment measured with the MMSE< 24, and people who are unable to self-report due to cognitive impairment will be included in this study 3. PwD, who have a next of kin or a legal guardian Nurses and relatives (relatives at home and/or acute geriatric ward and district nurses or ward nurses): 1. Nursing staff and relatives must be at least 18 years of age. Nursing staff must have been employed at least six months 2. Nursing staff and relatives must be able to communicate (speak and understand) in German 3. Relatives, who care for a family member or close friend who is diagnosed with vascular dementia or Alzheimer disease or who presents with dementia-like symptoms
Exclusion criteria
Exclusion criteria: PwD (patients at home and/or on acute geriatric ward): 1. PwD, who are dying when admitted to hospital 2. PwD, who have no next of kin and no legal guardian Nurses and relatives (relatives at home and/or acute geriatric ward and district nurses or ward nurses): 1. Member of nursing staff or relatives younger than 18 years 2. Relative who is not involved in the daily care of PwD
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Current primary outcome measure as of 01/04/2022: Burden of physical-, psychological, social-, and spiritual symptoms measured with the Integrated Palliative Care Outcome Scale for People with Dementia (IPOS-Dem), the German version of the Edmonton Symptom Assessment System (revised version) (ESAS-r), and the Nursing Diagnosis according to the NANDA-I Taxonomy. Measured at two-time points with a minimum of three days in between, i.e. at baseline and when the PwDs health status changes or at day 45, whichever comes first Previous primary outcome measure: Burden of physical-, psychological, social-, and spiritual symptoms measured with the Integrated Palliative Care Outcome Scale for People with Dementia (IPOS-Dem), the German version of the Edmonton Symptom Assessment Scale (MIDOS2), and the Nursing Diagnosis according to the NANDA-I Taxonomy. Measured at two-time points with a minimum of three days in between, i.e. at baseline and when the PwDs health status changes or at day 45, whichever comes first | — |
Secondary
| Measure | Time frame |
|---|---|
| Current secondary outcome measures as of 01/04/2022: Measured at baseline and when the PwDs health status changes or at day 45, whichever comes first: 1. Functional Status measured with the German Version of the Edmonton Symptom Assessment System (revised version) (ESAS-r) 2. Quality of life in Dementia measured with the QUALIDEM 3. Australian Karnofsky Performance Scale (AKPS) 4. Global Rating of Change (GRC) Previous secondary outcome measures: Measured at baseline and when the PwDs health status changes or at day 45, whichever comes first: 1. Functional Status measured with the German Version of the Edmonton Symptom Assessment Scale (MIDOS2) 2. Quality of life in Dementia measured with the QUALIDEM | — |
Countries
Switzerland
Contacts
Public ContactSusanne de Wolf-Linder
Outcome results
None listed