Adults resident in the UK with bronchiectasis Respiratory Bronchiectasis
Conditions
Interventions
This is an observational study. No interventions are undertaken as part of the study itself.
Once consented, participants have data extraction undertaken from their clinical notes. T
Sponsors
The Newcastle upon Tyne Hospitals NHS Foundation Trust
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Participant has capacity to provide written informed consent 2. Aged 18 years or over 3. Clinical and radiological diagnosis of bronchiectasis (documented) as defined by historical evidence of bronchiectasis on Computerised Tomographic (CT) scanning. Either CT or High resolution CT scanning (HRCT) is acceptable. 4. English speaking / access to interpreter (ability to complete quality of life questionnaires) 5. Exacerbation frequency – no lower threshold 6. Any suspected aetiological cause of bronchiectasis (except cystic fibrosis)
Exclusion criteria
Exclusion criteria: 1. Cognitive impairment 2. Non-English speaking/ unable to access interpreter 3. Terminal illness not related to bronchiectasis 4. Aged <18 years 5. Bronchiectasis is not main or co-dominant respiratory disease 6. Lung transplantation for previous bronchiectasis 7. Inability to attend yearly clinical follow up
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Develop and implement a cross sectional multi-centre observational cohort and biobank. | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. To evaluate and further define clinical outcomes longitudinally 2. To biobank serum and DNA from the cohort 3. To follow up entrants assessing mortality and morbidity | — |
Countries
United Kingdom
Contacts
Public ContactPhil Mawson
Outcome results
None listed