Improving dementia services to meet the needs of south Asian people Nervous System Diseases Dementia
Conditions
Interventions
The purpose of the south Asian Dementia diAgnosis PaThway (ADAPT) study is to create an online toolkit of culturally appropriate assessments and interventions that support people from south Asian comm
people living with dementia and their carers and staff and volunteers working in VCSO and NHS organisations. Given the ongoing pandemic situation, the researchers plan to carry out recruitment and dat
in phase 2 these vignettes will be presented in online workshops (and where necessary through telephone calls) with similar staff and volunteers who will come large
Sponsors
University of the West of England
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Work package 1: Either: 1. Someone living with a form of dementia (e.g. Alzheimer’s disease, vascular or mixed dementia) from a south Asian community (i.e. a family background from India, Afghanistan, Pakistan, Bangladesh, Nepal, Bhutan, the Maldives and Sri Lanka); or 2. Someone with experience of providing care to a family member or close friend who falls into category 1; or 3. Someone who works for a community-based organisation that provides care for people in category 1 or 2 Work package 2: 1. NHS staff with experience in providing care for people affected by dementia from south Asian communities Work package 3: 1. People from a south Asian background either living with dementia themselves, providing care to a family member with dementia or working for an organisation that provides care to these communities All participants will be required to have capacity to provide consent to take part in the research.
Exclusion criteria
Exclusion criteria: 1. The main exclusion criteria for all three work packages is that the individual does not having capacity to provide consent to take part in the research 2. For WP1 and WP3 there are no further exclusion criteria 3. For WP2, we will recruit to two phases. Anyone who has participated in phase 1 will be excluded from phase 2
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| WP1: Stakeholder responses to materials around dementia measured in a series of online workshops in June and July 2021 WP2: Stakeholder opinions as to the factors that act as barriers or facilitators to effective partnership working between statutory and voluntary sector organisations measured using interviews and onlione workshops in June and July 2021 We will analyse responses using thematic analysis. | — |
Secondary
| Measure | Time frame |
|---|---|
| There are no secondary outcome measures | — |
Countries
England, United Kingdom
Contacts
Public ContactEmily Dodd
Outcome results
None listed