Exploring the public's opinion on the use of their data in biobanking, linked to routine medical records, and the use of artificial intelligence in care and medical research

Perceptions of the public on the use of biobanking, large datasets from routine health records, and artificial intelligence in healthcare and research

Status

Recruiting

Phases

Unknown

Study type

Observational

Source

ISRCTN

Registry ID

ISRCTN16910438

Enrollment

500

Registered

2026-01-14

Start date

2026-05-14

Completion date

Unknown

Last updated

2026-05-25

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Mainly focused on but not exclusive to chronic inflammatory conditions: GI (inflammatory bowel disease), musculoskeletal (inflammatory arthritis such as rheumatoid arthritis, ankylosing spondylitis), skin (psoriasis, eczema, hydradenitis), and liver (autoimmune hepatitis, primary sclerosing cholangitis, primary biliary cirrhosis). Other

Interventions

This research will use a mixed-methods approach where an exploratory sequential design will be adopted. Quantitative phase: The first stage of this research will involve quantitative data collection

Eligibility

Sex/Gender

All

Age

18 Years to 100 Years

Inclusion criteria

Inclusion criteria: 1. Aged 18 years or above 2. Resident in the UK 3. Able to understand and speak English

Exclusion criteria

Exclusion criteria: 1. Less than 18 years of age 2. Not a resident in the UK 3. Does not understand English

Countries

England, United Kingdom

Contacts

Public ContactChaonan Dong

chaonan.dong2@newcastle.ac.uk+44 (0)7533150691

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: May 30, 2026