InvolveD: Involving South Asian, Black African and African Caribbean people in designing better dementia support

Developing a place-based model of support for people with dementia from ethnic minorities: a participatory research approach.

Status

Active, not recruiting

Phases

Unknown

Study type

Observational

Source

ISRCTN

Registry ID

ISRCTN16639504

Enrollment

210

Registered

2025-02-24

Start date

2025-01-30

Completion date

Unknown

Last updated

2026-03-02

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Involving South Asian, Black African and African Caribbean People in designing better dementia support Mental and Behavioural Disorders

Interventions

This project is a qualitative study adopting a participatory research approach. Sandwell and Wolverhampton are localities vibrant with ethnic minority communities. These localities are excellent case

2. Conducting community-based participatory workshops with people from different backgrounds (people living with dementia, carers, community members, health and social care services, local charities)

Eligibility

Sex/Gender

All

Age

18 Years to 100 Years

Inclusion criteria

Inclusion criteria: 1. A person with a diagnosis of dementia from a South Asian, Black African or African Caribbean background, residing in Wolverhampton or Sandwell 2. A person who has personally or professionally cared for/supported a person with dementia from a South Asian, Black African or African Caribbean background who resides in (or resided in) Wolverhampton or Sandwell 3. A South Asian, Black African or African Caribbean person who is familiar with dementia and resides in Wolverhampton or Sandwell 4. They must be aged over 18 years old

Exclusion criteria

Exclusion criteria: 1. Under 18 years old 2. Does not have the capacity to consent to participate

Design outcomes

Primary

Measure	Time frame
1. Local place-based models of support and implementation plans: Local place-based models of dementia support will be measured using a participatory approach with partners, including communities, statutory and third-sector organizations, and people with lived experience and carers throughout the project, with ongoing knowledge exchange and co-development of dissemination and implementation plans. 2. Detailed approach to participatory research and coproduction of plans: Participatory research methods and coproduced plans for improved support will be measured using an analysis of participatory configurations using existing CMO (Context-Mechanism-Outcome) configurations, and dissemination of lessons learned throughout the project, with dissemination to other communities and engagement with national stakeholders as the project progresses.	—

Measure

Time frame

1. Local place-based models of support and implementation plans: Local place-based models of dementia support will be measured using a participatory approach with partners, including communities, statutory and third-sector organizations, and people with lived experience and carers throughout the project, with ongoing knowledge exchange and co-development of dissemination and implementation plans. 2. Detailed approach to participatory research and coproduction of plans: Participatory research methods and coproduced plans for improved support will be measured using an analysis of participatory configurations using existing CMO (Context-Mechanism-Outcome) configurations, and dissemination of lessons learned throughout the project, with dissemination to other communities and engagement with national stakeholders as the project progresses.

—

Secondary

Measure	Time frame
There are no secondary outcome measures	—

Countries

England, United Kingdom

Contacts

Public ContactKaran Jutlla

K.Jutlla@wlv.ac.uk+44 (0)7725111574

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Mar 14, 2026