Health services research Other
Conditions
Interventions
The study consists of five Work Packages. Two of these run in parallel, so the overall project consists of four phases. The methods have been selected in recognition of the complex nature of self-negl
three principal issues contribute to this complexity:
1. Self-neglect is in many ways an umbrella term. It is useful and used in statutory guidance because it describes behaviours and situations that
high-risk cases where an assessment may take place even if
Sponsors
University of Sussex
Eligibility
Sex/Gender
All
Age
18 Years to 100 Years
Inclusion criteria
Inclusion criteria: Inclusion criteria for practitioners/managers (interviews, focus groups): 1. Practitioners/managers working in Adult Social Care, Primary Care, Acute Health, Mental Health, the Police Service, Fire and Rescue, Housing, Environmental Health, and voluntary sector or other organisations as may be designated by the local safeguarding adults board (LSAB) as having a key role locally in support for self-neglect 2. Experience of inter-agency practice supporting people experiencing self-neglect (practitioners) or having taken an active role in developing, implementing or overseeing guidance on self-neglect procedures in an inter-agency context (managers). Beyond these inclusion criteria, purposive sampling will be used to ensure that interviewees represent a spread of organisations/professions. Inclusion criteria for practitioners (follow-up interviews to evaluate resources, training, guidance produced by the study): 1. As above, plus has exposure to resources, training and/or guidance produced by the study The evaluation survey will be distributed to all organisations covered by the Safeguarding Adults Boards’ monitoring processes. Inclusion criteria for people experiencing self-neglect (interviews): 1. Aged over 18 years 2. Has the mental capacity to give informed consent to participation in the study 3. Has now, or had in the past, interagency involvement with partner organisations of one of the participating Safeguarding Adults Boards due to concerns about self-neglect 4. In the judgement of the identifying practitioner, invitation to participate in the study would not jeopardise safeguarding or engagement with support services.
Exclusion criteria
Exclusion criteria: Exclusion criteria for practitioners/managers (interviews, focus groups): 1. Does not work within a partner organisation of one of the participating Safeguarding Adults Boards 2. Has little or no direct professional experience of collaborative working with self-neglect Exclusion criteria for practitioners (interviews to evaluate resources, training, guidance produced by the study): 1. Is not aware of or has not encountered the resources, training and/or guidance produced by the study Exclusion criteria for people experiencing self-neglect (interviews): 1. Has never had interagency involvement with partner organisations of one of the participating Safeguarding Adults Boards due to concerns about self-neglect 2. Aged under 18 years 3. Lacks mental capacity to give informed consent to participation in the study 4. In the judgement of the practitioner (from any partner organisation), invitation to participate in the study risks jeopardising safeguarding or engagement with support services
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The study as a whole seeks to develop theory based primarily on qualitative data and addresses an issue where desired outcomes may vary by individual. The exploratory health economics assessment will consider individual outcomes (albeit at a level that is not powered for comparative evaluation). Currently, there is no accepted effectiveness outcome for self-neglect that can be used in economic evaluation. In this study we will consider two potential outcomes: 1. Social care-related quality of life (SCR-QoL) measured using the Adults Social Care Outcomes Toolkit (ASCOT) instrument INT4 at point of interview only 2. Health-related quality of life (HR-QoL) measured using the EuroQuol instrument EQ-5D-5L at point of interview only | — |
Secondary
| Measure | Time frame |
|---|---|
| There are no secondary outcome measures | — |
Countries
United Kingdom
Outcome results
None listed