Carer experiences (e.g. unmet need) and outcomes (e.g. quality of life) when they are supporting a family member or friend (with any type of physical and/or mental health problems) who was harmed in the NHS or social care Other
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: 1. A family member or close friend, who provides or provided help, care or support to an adult (aged 18 years or older) due to their care and support needs (“carers”), where the adult experienced harm in the NHS or Adult Social Care contexts in the last 5 years 2. Aged 18 years or older at the time of the harm 3. Able to participate in an interview. Reasonable support and adaptations can be made (e.g. language or disability support) 4. Able to give informed consent to participate in the study 5. Living in England
Exclusion criteria
Exclusion criteria: 1. The harm was experienced outside of England – whether one of the other UK nations or another country 2. The harm was experienced in private healthcare settings, outside of NHS care 3. Aged under 18 years (now or at the time when the harm occurred) 4. Unable to communicate in English, even with support or adaptations
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The experiences and outcomes of unpaid carer who help and support an adult with long-term health problems who experienced harm in the NHS and/or social care. Interviews will explore the impact of the harm on the carer, their actions after harm, and any support needs they have. Method: Qualitative one-to-one interview (a single interview) that will be analysed by thematic analysis. | — |
Secondary
| Measure | Time frame |
|---|---|
| There are no secondary outcome measures | — |
Countries
England, United Kingdom