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Crossing the Line: Providing personal care in the context of families affected by dementia

Crossing the Line: Providing personal care in the context of families affected by dementia

Status
Active, not recruiting
Phases
Unknown
Study type
Unknown
Source
ISRCTN
Registry ID
ISRCTN15891799
Enrollment
550
Registered
2023-04-26
Start date
2023-04-16
Completion date
Unknown
Last updated
2025-09-08

For informational purposes only — not medical advice. Sourced from public registries and may not reflect the latest updates. Terms

Conditions

Carers of people living with dementia Other

Interventions

Review of existing evidence A recent scoping of the literature (March 2021) found 56 articles relating to family carers of dementia in relation to personal care, with only eight focusing on the home

Sponsors

University of Worcester
Lead Sponsor

Eligibility

Sex/Gender
All

Inclusion criteria

Inclusion criteria: 1. An existing or previous family carer of a person who has dementia 2. Direct experience of personal/intimate care and bathing with a cared-for person who has dementia 3. Adult carers

Exclusion criteria

Exclusion criteria: 1. No experience of the topic under investigation in the last ten years to ensure the relevance of their experiences to current practice 2. Carers under the age of 18 years old

Design outcomes

Primary

MeasureTime frame
Understanding of the experiences of family carers relating to their provision of personal care to people living with dementia measured using a survey and interviews with an Appreciative Inquiry methodology within an Implementation Science framework by the end of the project. Survey findings will sequentially inform interviews yet all Work Packages (survey, interviews, coproduction) will be inter-connected and supported by the use of Data Displays developed to link the different elements of the study and integrate analyses. A co-production Work Package will produce core training resources for within-study piloting and evaluation.

Secondary

MeasureTime frame
There are no secondary outcome measures.

Countries

England, United Kingdom

Outcome results

None listed

Source: ISRCTN (via WHO ICTRP) · Data processed: Feb 4, 2026