Dementia Mental and Behavioural Disorders
Conditions
Interventions
Two home care agencies will be randomised to receive the NIDUS-professional intervention and one agency will be randomised to the control (they will not receive the training). The NIDUS-professional i
Sponsors
University College London
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: People with dementia: 1. 18 years or older 2. Any gender 3. Clients of a participating home care agency, with a documented diagnosis of dementia of any severity who are living in their own homes: alone and with others and with or without a family carer willing to participate in the study 4. Clients of a participating home care agency who screen positive for probable dementia (a score of 5 or 6) on the Noticeable Problems Checklist Family carers: 1. 18 years or older 2. Any gender 3. Family carers who are in at least monthly face-to-face, email or telephone contact with the person with dementia 4. Family carers who can speak English (for participation in NIDUS-family). Family carers do not need to speak English to take part in NIDUS-professional 5. Willing and able to provide written informed consent Home care staff: 1. All employees of participating home care agencies providing direct care to dementia clients or involved in managing/training home care workers 2. 18 years or older 3. Males or females 4. Be able to understand spoken English 5. Willing and able to provide written informed consent
Exclusion criteria
Exclusion criteria: 1. People living with dementia who are receiving palliative care support and considered to be in the last 6 months of their life 2. People living with dementia who, because they are temporary clients or have given notice, are not expected to be clients of the agency in 6 months’ time 3. Home care staff who do not plan to remain working in the agency for 6 months or more 4. Family carers or home care workers who lack capacity to consent
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Intervention adherence by home care workers as measured by the number of training sessions attended/number of planned training sessions at 3 months (end of training period) 2. Follow-up outcome completion by home care workers and clients with dementia (self-rated and proxy outcomes) as measured by the proportion of recruited home care workers, family carers and clients with dementia with follow-up data for each measure at 6 months after baseline | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Recruitment rate recorded as the number of eligible participants who consent to participate at baseline 2. Fidelity of delivery of the structured, manualised intervention measured by the number of training components delivered as intended at 3 months (at the end of the training) Home care workers will be asked to complete at baseline and 6 months after baseline: 3. Work-related strain inventory to measure the impact of work on everyday life 4. Sense of Competence in Dementia Care Scale to assess how able staff feel to deliver person-centred care The paid carer working most closely with each client with dementia will be asked to complete the following measures at baseline and 6 months after baseline: 5. The Dementia Quality of Life (DEMQOL) proxy that measures quality of life in people with dementia in the last week 6. Disability Assessment for Dementia scale, a standard measure of functional independence (basic and instrumental activities of daily living) 7. The brief Neuropsychiatric Inventory Scale (NPI-Q): a 12-domain survey assessing neuropsychiatric symptomatology. The NPI-Q provides symptom Severity and Distress ratings and total Severity and Distress scores Family carers will be asked to proxy-complete at baseline and 6 months after baseline: 8. Adapted version of the Client Services Receipt Inventory to measure health and social care resource utilisation including home care, hospitalisations, respite and all-cause time to transition from home to an institution 9. Home care satisfaction measure which measures how satisfied the client is with their receipt of home care 10. The Dementia Quality of Life (DEMQOL) proxy that measures quality of life in people with dementia in the last week 11. The brief Neuropsychiatric Inventory Scale (NPI-Q): a 12-domain survey assessing neuropsychiatric symptomatology. The NPI-Q provides symptom Severity and Distress ratings and total Severity and Distress scores Clients with dementia will be asked to complete, at bas | — |
Countries
England, United Kingdom
Contacts
Public ContactJessica Budgett
Outcome results
None listed