Dementias and neurodegeneration Mental and Behavioural Disorders
Conditions
Interventions
This research will build on the existing evidence base to co-design a community-delivered psychosocial intervention for medicines self-management strategies at home applying Experienced Based Co-desig
and 18 health/social care professional’s interviews.
We will learn from patients how they are able to respond, anticipate, learn and monitor their medicines self-management strategies, and how these
Sponsors
Bradford Teaching Hospitals NHS Foundation Trust
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Participants will be people with dementia, family carers, and health and social care professionals. People with dementia will be: 1. Living with mild-moderate dementia (as indicated by a Mini-Mental State Examination) score between 24 and 10). 2. Using two or more medicines 3. Living at home 4. Living alone or living with family carers Family carers will be: 1. Relatives, friends or neighbours identified as involved in supporting the person with their medicines 2. Caring for a person with mild-moderate dementia (as indicated by a Mini-Mental State Examination) score between 24 and 10), using two or more medicines, and living at home 3. Maybe living within or outside the household of the person with dementia Health and social care professionals will be: Community health and social care professionals who are supporting a person with dementia and family carers with medicines in the home environment.
Exclusion criteria
Exclusion criteria: People with dementia will be excluded if they are any of the following: 1. Using fewer than two medicines 2. Living in care homes 3. Live with moderate to advanced dementia 4. Lack capacity to consent 5. On the End-of-Life Pathway 6. Unable to communicate verbally Family carers will be excluded if they are either of the following: 1. Not a relative, friend or neighbour identified as involved in care for the person 2. The person they are caring for has advanced dementia, using fewer than two medicines, and/or not living at home Health and social care professionals will be excluded if they are any of the following: 1. Have involvement with a person recruited as part of this study (i.e. is a patient of theirs) 2. Not based within the community 3. The people they support have advanced dementia, not living at home 4. Have no involvement with patients with mild-moderate dementia, on two or more meds
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Phase One: Explore how people with mild-moderate dementia self-manage medicines using the theory of resilience in healthcare 1. Learn from patients and family carers how they can respond, anticipate, learn and monitor medicines self-management strategies, how these strategies support them across changes they experience through time, and health resource use measured using qualitative interviews, verbal or written accounts, diaries, photos, and analysed using framework analysis during Phase One. 2. Learn which health and social care professionals are involved, and how they can support people with dementia and family members to respond, anticipate, learn and monitor their medicines self-management strategies measured through interviews during Phase One. | — |
Secondary
| Measure | Time frame |
|---|---|
| Phase Two: Intervention development will be informed by the output from Phase One and joint events. 3. Up to three key areas will be taken forward for the next stage of a co-designed intervention with staff and people with dementia measured using various methods including a trigger film of patient experiences as a catalyst for change, patient experiences from Phase One, an existing video on medicines self-management from a PPI group member living with dementia and expertise of the study team, and co-design workshops during Phase Two (months 7-15). Phase Three: Outcome measures assessed in Phase Three will be determined from Phases One and Two. | — |
Countries
England, United Kingdom
Outcome results
None listed