Thoracic aortic disease Circulatory System
Conditions
Interventions
For this component of the NIHR programme – Acceptability Testing – we will conduct qualitative interviews with TAD patients and their first and second-degree relatives as well as Health Care Professio
Sponsors
University of Leicester
Eligibility
Sex/Gender
All
Age
16 Years to 200 Years
Inclusion criteria
Inclusion criteria: 1. People with a diagnosis of NS-TAD where this is defined as: 1.1. People with Acute Type A dissection, treated or untreated 1.2. People who have undergone non-emergency treatment (surgical or endovascular) for NS-TAD. This means anyone with NS-TAD who has had treatment at a UK cardiac surgery centre Or first- or second-degree relative of a patient with TAD Or healthcare professional involved in shared decision making consultations regarding screening for TAD 2. Aged 16 years and above 3. Diagnosed in the last 24 months from start date of this study when recruiting from Trusts (relevant for the patient with TAD) 4. Ability to understand the languages in which the information is available (Acceptability questionnaire study only) 5. Willingness to provide informed consent
Exclusion criteria
Exclusion criteria: 1. Previous diagnosis of syndromic TAD (relevant for the patient with TAD) 2. Inability to understand English written and spoken language (Acceptability questionnaire study only)
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| The acceptability of DST, assessed through an interview or a questionnaire with patients with TAD and their first- and second-degree relatives at a single timepoint for each participant | — |
Secondary
| Measure | Time frame |
|---|---|
| The feasibility of implementing a DST in clinical services and what training would be required to support delivery, assessed through interviews with healthcare professionals at a single timepoint for each participant | — |
Countries
England, United Kingdom
Contacts
Public ContactJane Hughes
Outcome results
None listed