The health, caring activities, and experiences of informal carers of patients in hospital at home services Other
Conditions
Interventions
Following their enrolment into the study, each carer will be invited to complete six short, validated questionnaires about their health, wellbeing, caring experiences and service use. Completion of th
Sponsors
Central London Community Healthcare NHS Trust
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. Informal carer 2. Not receiving payment for their caring role (excluding carer benefits or allowances) 3. Carer aged 18 years and over 4. Caring for someone receiving Hospital at Home care during the first 7 days of their treatment 5. Carer likely to have face-to-face or other contact with the patient and involved in organising or providing practical, emotional, or other support that assists the patient’s care or wellbeing. 6. Carer able to give consent 7. Carer able to participate via English or with support from an interpreter and/or translated questionnaires
Exclusion criteria
Exclusion criteria: 1. Unable to give informed consent 2. Carers paid to support the patient (excluding carer benefits or allowances) 3. Carers aged under 18 years of age
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Self-reported carer health and wellbeing, as measured qualitatively and quantitatively (EQ-HWD, Zarit Burden Interview, semi-structured interviews), administered at two time points – during and after HaH care | — |
Secondary
| Measure | Time frame |
|---|---|
| 1. Themes arising from carers reported experiences measured using semi-structured and carer activity interviews at two time points (during and after the patient’s HaH care) 2. Identified relationships between carer characteristics and wellbeing and perceived burden measured using Zarit Burden Interview, the CO-OP WONCA, the Carer Experience Scale, the WEMWBS, and the EQ-HWB at two time points (during and after the patient’s HaH care) 3. The demographic profile and contribution of unpaid carers supporting patients utilising HaH measured using the Carer Activity Interview at two time points (during and after the patient’s HaH care) 4. Carer wellbeing, perceived burden, and psychological and physical status measured using the Zarit Burden Interview, the CO-OP WONCA, the WEMWBS, the EQ-HWB, and the Carer Experience Scale at two time points (during and after the patient’s HaH care) 5. The economic impact on carers, including out of pocket expenses and health/social care use measured using the Client Service Receipt Inventory (CSRI) at two time points (during and after the patient’s HaH care) | — |
Countries
England, United Kingdom
Contacts
Public ContactNas Harrison
Outcome results
None listed