Needs and individual demands of informal caregivers Other
Conditions
Interventions
Quantitative data (collected by questionnaires) and qualitative data (collected by qualitative interviews) are collected over different data collection points.
In advance, a questionnaire was distrib
approx. 35 of these will be interviewed again after 12 months.
Sponsors
Bayerisches Staatsministerium für Gesundheit und Pflege (StMGP)
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: The participants are adult informal caregivers in the German federal state of Bavaria (Freistaat Bayern) who submitted an initial application for a care degree or an application for an increase in the care degree for the person being cared for. During the precursor study ProCare (https://doi.org/10.1186/ISRCTN1339092), 25,000 persons were contacted by the care advisors of the Medizinischer Dienst Bayern (MD Bayern) in the course of an assessment interview from September to December 2022 and received the first questionnaire. Participants of the current study are all persons who filled out the first questionnaire and gave their consent for further questionnaires.
Exclusion criteria
Exclusion criteria: Does not meet the inclusion critera
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Reasons for using or not using support services and care counselling, measured using self-report questionnaires 12 months and 18 months after the distribution of the first questionnaire in the ProCare project (https://doi.org/10.1186/ISRCTN13390923). 2. Aspects of individual quality of life and spiritual needs of informal caregivers, measured using qualitative interviews at baseline and (for approx. 35 of the approx. 50 people to be interviewed) also 12 months later. | — |
Secondary
| Measure | Time frame |
|---|---|
| All measured 12 months and 18 months after the distribution of the first questionnaire in the ProCare project (https://doi.org/10.1186/ISRCTN13390923): 1. Subjective burden of caregivers measured using the Burden Scale for Family Caregivers - short form (BSFC-s) 2. Quality of life of caregivers measured using a visual analogue scale (VAS) taken from the CarerQol-questionnaire 3. Benefits of being a caregiver measured using the Benefits of Being a Caregiver scale (BBCS) 4. Coping strategies measured using the COPE 6, derived from the Brief COPE questionnaire 5. Evaluation of the current care situation measured using questions based on the stress appraisal model of Lazarus 6. Health complaints measured using the Gießener Beschwerdebogen (GBB-24) 7. Depressiveness measured using the 9-item depression module of the Patient Health Questionnaire (PHQ-9) 8. Physical activity of caregivers measured using questions based on the RKI Survey Gesundheit in Deutschland aktuell 9. Loneliness of caregivers measured using the Short Scale for Measuring Loneliness 10. Relationship quality measured via self-report 11. Physical and mental health of caregivers measured using questions based on the Short-Form-Health-Survey (SF-12) 12. (Sociodemographic) data of caregivers including migration status measured via self-report 13. Utilization of informal support measured via self-report 14. (Sociodemographic) data of care receivers measured via self-report 15. Activities of daily living, instrumental activities of daily living, and supervision, measured by self-report questions | — |
Countries
Germany
Outcome results
None listed