Cancer in patients with a confirmed Lynch Syndrome diagnosis Cancer
Conditions
Interventions
A baseline health questionnaire and surveillance data will be collected, with additional data provided by NHS Digital.
Sponsors
Imperial College London
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: 1. English participants with a confirmed genetic Lynch Syndrome diagnosis 2. Previously taken part in the CaPP3 trial 3. Consented to be contacted about participation in a national Lynch Syndrome Registry
Exclusion criteria
Exclusion criteria: CaPP3 participants who have not agreed to be contacted about registry participation
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| Successful collection of baseline and surveillance data for consented participants and linkage with NDRS data at 9 months | — |
Secondary
| Measure | Time frame |
|---|---|
| Frequencies and proportions assessed from data successfully collected under the primary outcome measure at 9 months, including data on those attending colonoscopy or gynaecological surveillance, tested for Helicobacter pylori, presymptomatic and those taking aspirin and at what dose/frequency (see research questions) | — |
Countries
England, United Kingdom
Outcome results
None listed