Reviewing the involvement of bereaved parents/carers in the review of their child's death Not Applicable
Conditions
Interventions
The project will use a sequential explanatory design, with in-depth interviews conducted alongside a survey. The quantitative survey data will inform sampling strategies for interviews and guide quali
Sponsors
Birmingham Community Healthcare NHS Trust
Eligibility
Sex/Gender
All
Inclusion criteria
Inclusion criteria: Healthcare professionals: 1. The healthcare professionals (HCPs) (doctors and nurses) based in hospitals, hospices or community palliative care teams involved in Child Death Review (CDR) for children aged between 1 month and 18 years (post-neonatal child deaths) 2. HCPs able to be complete a survey or be interviewed in English 3. Able to give consent Bereaved parents: 1. The parents of children who died aged between one month and eighteen years (post-neonatal child deaths) since the start of 2021 (but not within the last 6 months), in hospital, hospice or at home with palliative care from any cause 2. Parents of children who died a minimum time period of 6 months ago, to ensure that hospitals/palliative care teams have had time to contact parents about CDR and to allow completion of CDR processes with parents offered feedback 3. Parents may still take part if they are taking legal action against healthcare trusts as the research project will not be seeking clinical information from healthcare organisations so participation will not prejudice any legal proceedings 4. Parents able to be interviewed in English or through an interpreter 5. Able to give consent
Exclusion criteria
Exclusion criteria: Healthcare professionals: 1. HCPs not involved in Child Death Review in their hospital, hospice or palliative care team 2. Refusal or unable to give consent Bereaved parents: 1. Parents of children who die suddenly in the community or hospital Emergency Department (e.g. Sudden Unexpected Death in Childhood [SUDIC], trauma, suicide) 2. Parents of children who have died prior to 2021 and less than 6 months ago 3. Refusal or unable to give consent 4. Parents of babies aged under 1 month
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| 1. Current CDR implementation and factors shaping this, assessed using a professional survey at a single timepoint 2. The processes of implementing, embedding and normalising parental CDR involvement, assessed using qualitative, semi-structured interviews with healthcare professionals at a single timepoint 3. Idiographic/personal meanings of the CDR process, assessed using qualitative, semi-structured interviews/focus groups with bereaved parents/carers at a single timepoint | — |
Secondary
| Measure | Time frame |
|---|---|
| The creation of a best-practice toolkit for parental involvement in the child death review process, through two sequential co-design workshops with bereaved parents and professionals at two timepoints approx. 6 weeks apart at months 11 and 14 of the study | — |
Countries
England, United Kingdom
Outcome results
None listed