Female genital mutilation/cutting Urological and Genital Diseases Female genital mutilation/cutting (FGM/C)
Conditions
Interventions
Sponsors
Eligibility
Inclusion criteria
Inclusion criteria: Work packages 1a and 2a: 1. Female 2. Aged 18 years or older 3. UK resident 4. Fluent in English, Somali, Arabic and/or French 5. Experienced female genital mutilation/cutting (FGM/C) 6. Willing and able to provide written informed consent. Work package 1b: 1. Male 2. Aged 18 years or older 3. UK resident 4. Fluent in English, Somali, Arabic and/or French 5. Partner/wife or family member who has experienced FGM/C 6. Willing and able to provide written informed consent. Work package 1c: 1. Aged 18 years or older 2. Fluent in English 3. Healthcare professional, including but not limited to: 3.1. General practitioners 3.2. Practice nurses 3.3. Midwives 3.4. Obstetrics and gynaecology clinicians 3.5. Genitourinary clinicians 3.6. Sexual health specialists 4. Currently or recently involved (within the last 5 years) in the delivery of care to FGM/C survivors and their families in the UK 5. Willing and able to provide written informed consent Work package 2b: 1. Aged 18 years or older 2. Fluent in English 3. Key FGM/C stakeholder, including but not limited to: 3.1. Healthcare professionals (see list for work package 1c) 3.2. Policy makers 3.3. FGM/C specialist researchers/academics 3.4. Health economists 3.5. Commissioners 3.6. Representatives from third sector organisations (e.g. charities and advocacy groups) 4. Currently or recently involved (within the last 5 years) in the delivery of care to FGM/C survivors and their families in the UK 5. Willing and able to provide written informed consent
Exclusion criteria
Exclusion criteria: Work packages 1a and 2a: 1. Psychological distress related to FGM/C, which prevents them from consenting and/or participating Work package 1b: 1. Partner/wife does not consent to their participation (if identified via a WP1a participant) 2. Psychological distress related to FGM/C, which prevents them from consenting and/or participating Work packages 1c and 2b have no exclusion criteria.
Design outcomes
Primary
| Measure | Time frame |
|---|---|
| An understanding of how FGM/C-survivors’, their male partners’ and HCPs’ preferences for the timing of deinfibulation and their views on how NHS services can best be delivered to meet the needs of FGM/C-survivors and their families. Data will be qualitative (with the exception of a non-validated demographic questionnaire that will allow us to describe the sample of participants) in nature including field notes, audio files and transcripts. Participants in work package 1 will take part in a one off interview or discussion group lasting between 60 and 90 minutes. Data will be collected over a 12-month period. Participants in work package 2 will take part in a one off discussion group lasting between 3 and 4 hours. Data will be collected over a six month period. | — |
Countries
England, United Kingdom